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I recently asked the Metropolitan Police Service about the existence of an 'activist list', alleged in an article by the late Michael Hanlon, that appeared in the Sunday Times Magazine in May 2013. Putting it briefly, I was told in two replies that I needed to supply "further information". I...

Yes, there appears to be a problem here. Given criticisms of the way the BBC has used the services of reporters with ties to the SMC, to use the old Private Eye line, 'I think we should be told'.

Presumably the BBC contacted an individual or a group of people who would provide balance, which should be the norm anyway. The problem I have with it is the lack of transparency over the identity, therefore the integrity/qualifications, of the people whose views were sought; SMC, anyone? The...

Expanding on what I said earlier, I think The Guardian rather grudgingly published the piece but the "grudgingly" I suspect is a result of the last eighteen months of PACE criticism and, dare I suggest, the beginnings of backtracking/goalpost shifting. I think even The Guardian may now be...

I would agree with "not as bad as I feared". I do feel there's a slight grudging nature on the part of the paper for carrying this though and, as ever, I cannot remember when I've been satisfied by a newspaper article on this topic but then maybe the likes of us (in this particular boat) are not...

As you no doubt know The Guardian has a somewhat terrible record on matters 'CFS/ME'. Up until about 2000 it's quite sympathetic, especially in the eighties/early nineties, indeed in the mid to late seventies it's a little bit of a groundbreaker (if you include The Observer). As part of the...

I've, increasingly, been of the opinion that a legal route has, in some way, to be sought here. I watch the reactions of the BPS crowd and I sense, at the minimum, a touch of backtracking on the part of some of them.

Yes, I'm pretty sure I know who you are! Thought that it might be an idea to inform a wider group of PWMEs of the PACE funding (no harm in enquiring and it makes the patients more knowledgeable). On top of that, I (with my colleague) have a MUCH bigger ME project coming up which should be made...

I know - I've been to the National Archive and seen the correspondence from the early/mid nineties regarding 'advice' given to government.

Yes that was well known before I put in the FoI requests but in the context of the contributions by funders that have been made public, it's still a relatively small sum. However, it appears to me that the then government may have wanted a particular solution to the problem of 'ME/CFS', given...

The DWP gave £90,000 to PACE which, in the context of contributions from the other funders, is the smallest of all contributions (based on Freedom of Information requests).

Yes. I don't know how the funding of such studies works so we'd probably both like a bit of information on the mechanics of this matter.

QMUL cannot provide a final cost. It's fair to say I find this a little unusual.

Hello, First post, here goes... I recently placed a number of Freedom of Information requests with the funders of the PACE trial, named on the QMUL website. All the funders replied to my requests. All four named funders are below, with the donations they disclosed to me: The Department...