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We have in our possession copies of a few documents from the time that state that more than one member of staff was ill for years.

Very slight correction - the hospital closed just a bit before the 25th. As far as we know it closed to new admissions. Edit: just checking my scans of the paper articles and the Manchester Guardian said "closed to further admissions".

I don't think dumping all of this in the public domain in one go is a good idea at all and yes, something(s) is (are) being prepared.

We had the research stored away for a number of years.....and along came the 65th anniversary and covid-19. Only some of the research is being released as there are plans to release much more at a later date but when I saw stories of people referring to post-covid complications it was an...

In fairness it's an old article and the contributor may (I don't know but I'm using "may") have had their tongue in their cheek slightly. I'm sure we'll release the whole article in due course. It's not online as far as we know and we've had this for nearly a decade.

Thanks for mentioning this. I'm the one curating the account and I'm partially responsible for the research (as mentioned in the bio).

Interesting that the location for this is Oxford.

The very last section of this article is significant: 'compensation'. Somebody, somewhere will go to court.

Here's the now unedited version of the TC MUS talk which includes a small piece on the study: https://www.dropbox.com/s/i93a17i1to7gkcn/TC130319 unedited.m4a?dl=0 (the IBS study is roughly forty minutes in)

This was the study that was mentioned by TC at her ''MUS" talk a few weeks ago at UCL. She asked those attending not to leak it until its release. It was excised from my recording.

I downloaded it last year.

I trust that if someone *does* do this they will not publicise this in advance. It is of public interest so I think it's very much fair game but these people are intent on getting their own way, much to the detriment of sick people.

Thanks MW. Approximately 35 people attended, mostly young (as is referred to in the talk) and, I'd say, mostly female. The room was slightly less than half full. There was a slide show presentation which displayed a bit more data but unfortunately (albeit it's probably fairer to say...

I'm sure there's many in the ME/CFS bin that's been misdiagnosed - not the fault of the patient. The lack of talent and unaccountability circus seems to be moving on to 'MUS' and patients may need to force the issue and perhaps not be quite so deferential.

Which indeed it is. Start saving up for those court cases, patients.

https://www.dropbox.com/s/yhg3rqar20rt7ga/TC130319.m4a?dl=0

This is a tweet from the event:

https://www.dropbox.com/s/yhg3rqar20rt7ga/TC130319.m4a?dl=0

I've just started listening to the BBC Radio Bristol feature from yesterday which is mentioned elsewhere on this forum and *immediately* it starts with 'fatigue'. That's the problem. It's *always* about fatigue. That sets major, restricting boundaries for anything else that comes along. If you...