Search results

  1. A

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    You are quite right to pick up on the various dates that the outbreak was supposed to have started and I've hinted at that on the account. There will be more examples of this later.
  2. A

    United Kingdom: News from Forward-ME Group

    I'm afraid I have no recollection of it at all although it may be somewhere in my archive - but I doubt it. Never really got involved in the politics of it.
  3. A

    United Kingdom: News from Forward-ME Group

    "gentlemen's club". As I mentioned (I think elsewhere on S4ME) I attended every single APPG on ME between April 2006 and March 2010. I almost always attended the meetings with my RFH research colleague and often we would meet the head of RiME there. Whereas I never talked at any of these...
  4. A

    United Kingdom: News from Forward-ME Group

    The setting up of 'Forward ME' was specifically designed to keep out patients/patient activists. I attended all of the APPGs at the HoC between April 2006 and March 2010 and the CoM disliked us being there. She even tried to get my friend and colleague arrested after one meeting.
  5. A

    Medically unexplained symptoms in children: an experimental investigation of the impact of internet searching on parental responses, 2020, Hughes

    I'll reply later more fully but there is a punchline here - when one of the hospitals that had started seeing me as a patient (there were a couple) told me to put in a request for a glucose monitor to the GP (this is just before I was put on insulin IIRC) refused my request. The hospital then...
  6. A

    Medically unexplained symptoms in children: an experimental investigation of the impact of internet searching on parental responses, 2020, Hughes

    What can I do? The patient is powerless. I think the (rather obvious) MUS categorisation in my case came from my medical files being *that* thick through 'CFS'. The diagnosis I'm sure is leading to patients having future problems being downplayed/dismissed. I'm, to say the least, very bitter...
  7. A

    Medically unexplained symptoms in children: an experimental investigation of the impact of internet searching on parental responses, 2020, Hughes

    I went to the GP presenting an increased amount of lassitude and a worsening of eyesight in late 2016. I was sent for blood tests. When the results came back I was told by this GP that everything was fine and that I should get 'a part time job' and that I've had 'extensive testing'. After seven...
  8. A

    Who is Simon Wessely?

    Thanks for the clarification.
  9. A

    Who is Simon Wessely?

    Thanks for the post. If I can use precise quotes, on his website SW says: "Allegation: “Wessely threw a boy into a swimming pool to see whether he would sink or swim”" and then ends with "Needless to say, I have never thrown this child, or any other, into a swimming pool." Firstly, where has...
  10. A

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Richmond helped set up "Healthwatch". Dick Taverne is a patron of HW. DT is the chair of Sense About Science. SAS has links with the Living Marxism network. I know this is a little 'guilty by association' but I feel it's maybe relevant to point this out.
  11. A

    BMJ Editorial 1970 - Epidemic Malaise- probably by Martin Ware

    Thanks for the comments. I'm not sure I have anything too much on Friendly as he wasn't intrinsically involved in the RFH or associated, FWIW. You're not wittering at all. I'm enjoying the posts.
  12. A

    BMJ Editorial 1970 - Epidemic Malaise- probably by Martin Ware

    Just dug out an old article with a reply from (I suspect the same) Walshe. If you want I can post it on the RFH account.
  13. A

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    How familiar are people with this paper? I've had one person on Twitter say they were not aware of it.
Back
Top Bottom