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I'm so sad and angry about the situation @mango is describing, but it's important that people with ME arounds the world get to know the truth. The situation is serious and I suspect it will get worse for all people with ME in Sweden now. We have to continue fighting for better science and better...

Thank you, I forgot!

A little push to help the crowdfunding in Sweden. It's a short piece about the accomplishments so far, stating that ROI is great so people should donate. (The headline means "Help David Tuller report on the ME-scandal")...

They have done that sometimes before, but often they have also pointed out that not all people agree on it. In this article, they have no mentioning at all of BPS, which is a step forward.

Swedish Dagens Medicin has written about the OMF research collaboration in Uppsala. The article is short and not spectacular but it is somehow spectacular that this magazine reports on it, since they have a history of ignoring biomedical research news about ME...

The researchers behind this study are determined in their beliefs that the symptoms in ME don't have a biological cause and that increasing activity means making peoples' lives better. I've read through the research plan and application for ethical approval very thoroughly and it's clear that...

Here's part two in the series of blog posts about the Swedish BPS study mentioned above. This post describes how the the participants is subjected to fairly high risks of PEM but are told that the tests and procedures are safe...

In 2015, a bunch of Swedish BPS-people started a study where they wanted to test Acceptance & Commitment Therapy on pwME. From the information given in the application for ethical approval, it's clear that the aim is to get the participants to increase their activity. The study is so far called...

I have only looked through it briefly but so far, it's better than I expected (I expected this to come out as total biopsychosocial nonsense, but thank god it didn't). I think there are a couple of problems but I need to read though this thoroughly when my head is clearer before I elaborate on that.

Oh and I forgot. When it comes to science we do have som good researchers but also a couple of BPS researchers and unfortunately, some of the BPS have just been granted more money for a study that seem to be about behavior. Like we didn't have enough of behavior studies that aren't helping us.

I'm Swedish and even though I'm too foggy to give an exhaustive account at the moment, I can give you some information about the situation in Sweden. Basically, it's ambiguous. On one hand we have a few clinics specializing in ME, and at least one of them (Stora Sköndal) has a biomedical...

I downloaded a video from when she talked about ME on the national news i February. It doesn't have subtitles but she talked about name confusion and that Chronic Fatigue Syndrome (kroniskt trötthetssyndrom in Swedish) is a misleading name because there are so many other symptoms. She mentioned...

She is a serious journalist. In February, she was talking about ME on a big TV channel and I e-mailed her and asked if she had heard of the PACE trial and gave her links to a couple of sources. She responded and thanked me and also wrote that a couple of other people had informed her about PACE...

Here's an article about Cochrane's review on GET. Unfortunately it repeats what Reuters said, even though it also says that Cochrane has received extensive feedback about the review. In the end, the article mentions an old misunderstanding about the Swedish ME association RME trying to stop a...