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From Facebook: Obtaining an NHS flu vaccine from a pharmacy Feedback from our members indicates that most pharmacies are, as in previous years, happy to provide a free NHS flu vaccine to people with ME/CFS who choose to have one. When one of our members was recently refused a free flu jab at...

MEA Facebook: New Government Plan to “Keep Britain Working” – What does it mean for people with ME/CFS or Long Covid? The UK Government has announced a new partnership with major employers to tackle rising economic inactivity linked to long-term sickness. The ME Association are concerned...

From Facebook: Research: New funding awarded to PhD project that will identify key metabolites and infection markers in ME/CFS We’re pleased to share news of a new PhD project that is being jointly funded by the MEA Ramsay Research fund and the UKRI (UK Research Institute) that aims to...

https://www.eurekalert.org/news-releases/1104980 News Release 6-Nov-2025 COVID-19 vaccination lowers long COVID risk in adolescents Peer-Reviewed Publication Columbia University Irving Medical Center Nov. 6, 2025--Adolescents who were vaccinated against COVID-19 were less likely to develop...

A normalised change of 6.3 is around 0.63 x 24 =15.12 on the non-normalised SF 36 PF.

Do we know whether the SF36-PF scores are normalised or not normalised? An improvement of 6.3 on the normalised scoring system is more impressive than 6.3 on the non-normalised scoring system.

https://institute-genetics-cancer.ed.ac.uk/research/research-groups-a-z/ponting-group

2025 Annual Meeting Overlooked: Less Studied Pathologies across ME/CFS, Long COVID, and Related Illnesses Guest Speaker: Beth Pollack, Research Scientist, Tal Research Group, MIT Department of Biological Engineering Beth Pollack discussed aspects of ME/CFS, Long COVID, and co-occurring...

From: David M Tuller Subject: New Trial By Error Interview--with Irish psychologist Brian Hughes-- Berkeley's crowdfunder for Trial By Error has reached 79% of the goal, with a few days left. Here's the link: https://crowdfund.berkeley.edu/project/47768 ********** My friend and occasional...

I was just clearing out some files and came across this horrific letter. I think somebody would be much less likely to put their name to such a letter these days, thankfully.

From AfME’s Facebook: APPG on ME update Unfortunately, the APPG's severe ME inquiry evidence session, scheduled for last Thursday, did not go ahead due to a limited number of MPs being in Parliament that day. We are currently working to rearrange the session to ensure that the evidence...

From Facebook: ✨ From Stigma to Science: Educating for Change – Thank You! ✨ What an incredible afternoon at Australian Parliament House! Together with parliamentarians, clinicians, researchers and people with lived experience, we took another big step toward real action for people living with...

ME Research UK: ME Research UK's October e-newsletter will have been delivered today to inboxes of everyone on our e-newsletter list. Yet to join the list? Sign up today - https://tinyurl.com/3z48utad Latest edition can be read here...

Disappointed Leonard Jason is leading this as it very likely will mean all the symptoms that aren’t universal (or close to being universal), but maybe 50-70% of patients have, won’t be used. Such data can help strengthen criteria but from all I have picked up from him over the years, he doesn’t...

Update VHS conference 2025: DecodeME poster finalist. Go to, https://vhscotland.org.uk/vhs-poster-competition-finalists/ https://vhscotland.org.uk/wp-content/uploads/2025/10/Action-for-ME-VHS-conference-poster-Oct-2025.jpg-scaled.jpg

Full paper now published: https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2025.1647897/full Cognitive behavioural therapy for the treatment of chronic fatigue syndrome in adults – a meta-analysis Vivek Kolala1*†Billie La Rosa2,3†Venkat Vangaveti4†Kai Yang Chen4†...

=AZV6RVYoBtK4z6aihUgImiliZKcBI_urMTquTyv5cNzcEIASNElrOUkZmCnYBjAIYVolHx2JAdtsnjIRkdFKqI1ss0t4jGLPDfjxAv2DrOWVt_Ry9t-6jj9lDz62KnNLSsqYRdlcRw2rSt8NEbfW5OwXLPXU9NPE2u9iEBJ5Hbu0pw&__tn__=-UC%2CP-y-R']Pandora Org Dear ME/CFS Community, After decades of dedicated service, education, and advocacy...

One billion pounds may sound a lot. But spread over 11,000+ conditions it is - an average of £18,182 per year per condition if “between 2016 and 2021” means five years - an average of £15,152 per year per condition if “between 2016 and 2021” means six years

"Peter Gøtzsche and John Ioannidis argue that it is not always sensible to include subject experts as authors of systematic reviews and meta-analyses" https://web.archive.org/web/20190304160549id_/http://pdfs.semanticscholar.org/c8ea/f1efcdbef63281eb7081b3be8cfc0fd1f833.pdf BMJ 2012;345:e7031

https://www.eurekalert.org/news-releases/1103859 News Release 29-Oct-2025 COVID may increase risk of dangerous blood clots after panniculectomy COVID history is an 'additional risk factor' for VTE, reports Plastic and Reconstructive Surgery Peer-Reviewed Publication Wolters Kluwer Health...