Search results

My Reflections on the 2025 IACFSME Conference by Lucinda Bateman, MD | Nov 10, 2025 | BHC News, Long COVID, ME/CFS https://batemanhornecenter.org/reflections-on-the-2025-iacfs-me-conference/ Has minimal new information. “Sadly, several scheduled speakers from federal agencies such as the CDC...

I was clearing out some files and came across the following. I remember how Prof Read was so influential in the IBS Network (UK National irritable bowel syndrome charity). It was one of the many reasons I stayed so involved in running an ME/CFS group: I didn't want somebody like him to be so...

Twitter made a news item on the story:

https://emerge.org.au/nhmrc-me-cfs-guideline-development-updates/ Newest Updates on the ME/CFS GDC Published: 28 October 2025 Second meeting of the NHMRC ME/CFS Clinical Guideline Development Committee The NHMRC ME/CFS Clinical Guideline Development Committee recently held its second...

Report: https://emerge.org.au/what-we-do/campaigns-events-and-causes/me-cfs-and-long-covid-action-forum/

Could a dysfunctional norepinephrine pathway lead to post-exertional malaise? International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) 369 followers September 29, 2025 Share quote By Fred Friedberg, PhD, IACFS/ME President...

MEA: 1/2: MP Tessa Munt has tabled a debate on ME/CFS in Westminster Hall on 19 November 2025 from 4:30pm until 5:30pm Please write to your MP and ask them to attend the debate next week! https://whatson.parliament.uk/event/cal53589 #pwME #MyalgicE #MECFS #WriteToYourMP #Parliament #Debate...

From Facebook: Successful Outcome: MOD to remove outdated ME/CFS Guidance following Health and Social Care Team intervention The Health & Social Care Team (HASC) is pleased to share a positive outcome following recent engagement with the Ministry of Defence (MOD) regarding the treatment and...

https://www.tandfonline.com/doi/full/10.1080/14635240.2025.2588191 Research Article Uncertainties of living with Chronic Fatigue Syndrome: barriers to treatment and its consequences Gopika Surendran Tony P Jose Received 07 Aug 2024, Accepted 03 Nov 2025, Published online: 11 Nov 2025...

ME Research UK: The 2nd International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID (November 12th-13th) is currently being held in Porto, Portugal, and ME Research UK has been attending remotely. A highlight from this morning’s session was Caroline Kingdon’s...

From Facebook: ME Research UK is delighted to announce that we have awarded funding to Prof. Bhupesh Prusty at Riga Stradins University in Latvia for a project investigating the role of autoimmunity in ME/CFS. Following on from his previous work, Prof. Prusty will look at the mechanisms...

Role Reversal: Could a WEAKENED Fight/Flight Response Be Causing ME/CFS and Long COVID? The 2025 IACFS/ME Conference Pt. I by Cort Johnson | Nov 11, 2025 | Astrocytes, Autonomic Nervous System, Brain, Brainstem, Dopamine, Energy Production, Homepage, Locus coeruleus, long COVID...

Main link isn’t currently working. Here is an alternative link to the full text: https://pmc.ncbi.nlm.nih.gov/articles/PMC12588452/

As an aside, it is interesting to hear some people in the disabled community say they wouldn’t want to be cured. I’m not just talking neurodivergent people but people with physical disabilities. What percentage they might be, I have no idea.

https://www.eurekalert.org/news-releases/1105355 News Release 10-Nov-2025 Scientists reveal another piece in Long COVID puzzle New study reveals a structural association between circulating microclots and neutrophil extracellular traps (NETs) in patients with Long COVID. When dysregulated, this...

https://www.sciencedirect.com/science/article/pii/S0277953625010974 Social Science & Medicine Volume 388, January 2026, 118766 Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome Bita Nezamdoust, Erin Ruel Department of Sociology, Georgia State...

https://www.eurekalert.org/news-releases/1103994 News Release 10-Nov-2025 Link found between chronic fatigue and abnormal breathing could lead to new treatments New study finds that many people with chronic fatigue syndrome experience disordered breathing which may be worsening symptoms...

https://www.mdpi.com/2077-0383/14/17/6185 1 September 2025 Redox Status in Patients Suffering from Multiple Chemical Sensitivity (MCS): A Pilot Study Paula Aranda-Martínez1,2, Nerea Menéndez-Coto3,4,5, Ana Coto-Montes3,4,5, María Martín-Estebané1,2,6, Germaine Escames1,2,6 and Darío...

https://www.findaphd.com/phds/project/personalised-blood-based-biomarkers-for-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-symptom-severity/?p189584 University of Edinburgh Prof Chris Ponting Dr Audrey Ryback Dr Sjoerd Beentjes Dr Ava Khamseh Friday, January 16, 2026 Funded PhD...

Longer post from Facebook: November is National Family Caregiver Appreciation Month. #MEAction is bringing you two powerful webinars with Kim Moy and Denise Lopez-Majano to honor and support caregivers in our community. Caregiver Wisdom and #MEAction will be sharing more resources throughout...