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UK Research & Innovation 11 February 2025 Opportunity name changed from 'Researching ME/CFS: highlight notice' to 'Researching ME/CFS: priority area'. Research areas updated. https://www.ukri.org/opportunity/researching-me-cfs-priority-area/

The Vice Chancellor of Germany raising awareness for ME Stell dir vor, du bist permanent erschöpft. Dein Körper spielt nicht mehr mit, der Kreislauf schwankt, die Konzentration bricht weg, Schmerzen und Überempfindlichkeit begleiten jeden Tag. Jede Anstrengung macht es schlimmer. Arbeiten...

I saw a thread on this on Twitter that highlighted this trial used vitamin D2 rather than the more commonly used vitamin D3. I'll have to leave it to others how significant or otherwise this might be.

OK, I tried with both my parents’ cars, tilting the front passenger seat back and using cushions. I think I will do this for both cars in future. I got the impression my orthostatic intolerance wasn’t being triggered as much in both. There was actually a very large difference in how much tilt...

Article in German Cochrane unter Druck: Entscheidung zur Überarbeitung der ME/CFS-Studie sorgt für Empörung https://www.dmz-news.eu/2025/02/18/cochrane-unter-druck-entscheidung-zur-überarbeitung-der-me-cfs-studie-sorgt-für-empörung/

Article in German Arte documentary about the disease ME/CFS: A film that is supposed to make its audience cry Two filmmakers have made a shocking documentary about life and death with ME/CFS. One of them suffers severely from the disease herself and was only able to work on the project from...

https://www.thecanary.co/global/world-analysis/2025/02/17/chronically-ill-chronically-ignored/

:( “My husband killed himself 1 year ago because he didn't want to be forever bed bound and tied to the feeding tube. I wished he had held out hope. Thank you for sharing your story so it can help others who have lost hope”

Registration is now open for our 4th ME/CFS, long COVID and Gulf War Illness (GWI) International Conference: RID — Research, Innovation and Discovery 2025! Our RID conference will be held at , Tweed Heads, New South Wales on , . Discounted accommodation at the Sebel Twin Towns and Mantra Twin...

Many will recall Paul Hwang was the NIH researcher behind the WASF3 study https://www.s4me.info/threads/wasf3-disrupts-mitochondrial-respiration-and-may-mediate-exercise-intolerance-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-hwang-et-al.34776/

Most of the sitting I do is with my feet up. So at our main table, the space opposite me needs to be free so I put my feet on it. I have a (hard) pouffe where my PC is and another in the sitting room which I use when guests are here and lying down wouldn’t work. On the rare occasion I’m out...

I vaguely recall hearing people say before they sat in the passenger seat in the front seat and tilted the seat back a lot. I think I experimented with it once but the seat didn’t go very far back.

Unfortunately I’m too long to lie flat in the back of most cars so not sure this would work for me. Anyone have any experiences or thoughts?

OK, I experimented. I could only seem to manage one or other at a time. The one across my neck was quite tight and close to my neck. The one around my lower body was much more comfortable but still did give security so think I will use that going forward. (Written before other responses came in).

Are you able to describe how you do that please?

I generally lie in the back seat when being driven anywhere. I could sit up for not-long journeys but it uses up some of my energy which I want to save for whatever reason I’m going out. Not wearing a seat belt is against the law here but my attitude up till now is “we’ll cross that bridge...

https://www.mdpi.com/1660-4601/22/2/276 Open Access Article Functional Capacity Impairment in Long COVID After 17 Months of Severe Acute Disease by Fernanda Facioli dos Reis Borges 1, Andrezza Cristina Barbosa Braga 2, Bernardo Silva Viana 3, Jefferson Valente 4, João Marcos Bemfica 4...

https://link.springer.com/article/10.1007/s11673-024-10416-1 Home Journal of Bioethical Inquiry Article An Ethics of Care, Relational Suffering, and Contested Invisible Disability Original Research Published: 13 February 2025 (2025) Cite this article Journal of Bioethical Inquiry...

Yes: https://virology.ws/2021/04/06/trial-by-error-guardian-columnist-george-monbiot-is-causing-long-covid-says-professor-michael-sharpe/

Whenever this comes up, I feel inclined to highlight Peter White https://virology.ws/2017/08/07/trial-by-error-retired-pace-investigator-peter-white-and-swiss-re/ We have one case on record (someone got their records under the data protection act)...