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Correspondence Volume 167, Issue 3 e96-e97 March 2025 Response Enya Daynes enya.daynes@uhl-tr.nhs.uk ∙ Neil J. Greening ∙ Sally J. Singh NIHR Leicester Biomedical Research Centre, Glenfield Hospital, and the Department of Respiratory Sciences, University of Leicester, Leicester, England To...

https://journal.chestnet.org/article/S0012-3692(24)05599-5/fulltext Postexertional Malaise and Rehabilitation in Long COVID To the Editor: Daynes et al1 published a review in an issue of CHEST (September 2024) that analyzed the literature on pulmonary rehabilitation in patients with...

Includes video recording https://cureme.lshtm.ac.uk/index.php/2025/03/10/first-cure-me-webinar/ First Cure-Me Webinar Read more Mar 10, 2025 Building Bridges: Community strategies and research insights from the CureME team and ME/CFS study participants Thank you to everyone who joined out...

https://uwe-repository.worktribe.com/output/13780159 Shame, Psychology and ME Cheston, Richard; Cheston, Katharine Home Outputs Authors Professor of Dementia Research Richard Cheston Richard.Cheston@uwe.ac.uk Professor in Mental Health (Dementia Care) Katharine Cheston Abstract In...

From the Sunday Independent on March 9: https://www.independent.ie/life/health-wellbeing/health-features/neurologist-dr-suzanne-osullivan-we-are-a-perfectionist-society-we-explain-away-differences-or-struggles-as-medical-problems/a622135327.html Without paywall...

The embargo is finished and the full thesis can now be accessed here: https://era.ed.ac.uk/handle/1842/41600

ME Research UK: Regrettably, many people with ME/CFS experience a psychosomatic and psychiatric misdiagnosis – where symptoms of a physical disease are erroneously attributed to mental health and lifestyle. Interestingly, a paper published in the journal “Rheumatology” has investigated the...

Version 2: https://www.preprints.org/manuscript/202502.0185/v2

https://www.sciencedirect.com/science/article/abs/pii/S0022399925000558 Journal of Psychosomatic Research Available online 6 March 2025, 112091 In Press, Journal Pre-proof Within person predictors of physical activity and fatigue in long Covid: Findings from an ecological momentary assessment...

5. Conclusions Communicating with patients about complex, chronic, and disabling illnesses can be an uncomfortable, nuanced, or highly emotional interaction that few healthcare professionals have been taught to engage in throughout their medical training. Clinicians may be apprehensive while...

In the second post, I highlight how the term was used in a long Covid paper.

Just to be explicit in what I’m thinking: I’m guessing there have been people with orthostatic intolerance where it has been psychologised with this term. Though perhaps it has a more neutral meaning in some cases and just a descriptive term.

This is the paper in which I came across it: Objective Sleep–Wake Findings in Patients with Post-COVID-19 Syndrome, Fatigue and Excessive Daytime Sleepiness "These findings highlight a polysomnographic and actigraphic profile of increased arousal and clinophilia, alongside moderate sleep apnea...

I just came across a new medical term to me and thought it might be interesting to highlight it. "The word clinophilia means "liking to lie down" (from the Greek clino- [lying down] and -philia [love]). It is one of the first symptoms of depression or schizophrenia, but is not in itself a...

This may often be wrong but could sometimes be right too. I went to over 100 physiotherapist appointments with maybe problems in 20 different spots. Even though I had stopped playing sports and was just either doing a bit of swimming or a bit of cycling so shouldn’t have had so many injuries. It...

OK, wasn’t sure it was “bold worthy” but have changed it to that.

1st paragraph of the introduction Clinical care and communication surrounding complex chronic disorders, such as Long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), dysautonomia, and other disorders involving chronic fatigue and chronic pain has been a challenging task...

And for anyone who doesn't know, he has been very influential in the ME/CFS field. And had seen lots of patients for 15-20 years before writing this including running the NHS CFS/ME service for a portion of England. He's not some random doctor.

Regarding hope: Too much focus on hope can mean patients don't adapt e.g. get mobility aids. But also that health professionals won't help patients adapt e.g. supply disability aids and accommodations. An example of that on steroids can be seen in comments by Peter White on the draft version of...

5 letters have been published in reply to this article. None seem to refer to post viral illnesses. https://www.theguardian.com/society/2025/mar/07/mind-over-body-the-trouble-with-treating-chronic-conditions