ME Research UK:
A team of researchers in Australia – including Dr Kiran Thapaliya, Professor Sonya Marshall-Gradisnik, and Dr Natalie Eaton-Fitch who are also currently working on research funded by ME Research UK, have reviewed existing evidence relating to quality of life – the degree to...
ME Research UK:
A review paper from Dr Karl Morten’s team has highlighted that “complex chronic illnesses” ME/CFS, fibromyalgia, and Gulf War Syndrome (GWS) not only have common symptoms such as fatigue and pain but also display “significant overlap in the molecular and cellular disruptions”...
I haven’t vetted this
https://www.mecfsresearch.nz/
ME/CFS Research
Kia Ora, my name is Sarah Jansen, and I am a student at the Southern Institute of Technology in Invercargill, Master of Applied Health Sciences (Wellness and Rehabilitation).
I am seeking perceptions about chronic fatigue...
https://padlet.com/katha1970_/personal-collection-of-information-for-patients-with-complex-p20bhx4pb54x1may/wish/2998552241
Summary of the #UniteToFight2024 conference by @katha1970 (on Twi@er/X)
First International Conference on Long Covid and ME/CFS #UniteToFight2024 marks a turning point in...
I’ve just remembered Gary Frankum, a UK speedway rider with ME, who raised quite a bit of awareness at the time. Haven’t heard anything about him in years.
Post-Covid Awareness Day in Belgium: Protest Belgian patients.
Go to (Google translation from Dutch to English),
https://www-bruzz-be.translate.goog/actua/gezondheid/long-covid-patienten-houden-ligbetoging-voor-betere-zorg-artsen-ontkennen-soms?_x_tr_sl=nl&_x_tr_tl=en&_x_tr_hl=en
News Release 13-Mar-2025
Symptoms of long-COVID can last up to two years after infection with COVID-19
According to a study of the COVICAT cohort, almost one in four people infected with SARS-CoV-2 suffered from long-COVID
Peer-Reviewed Publication
Barcelona Institute for Global Health...
Hope 4 ME & Fibro NI
Two Lives – One Story is a deeply personal video that reflects the reality of those living with Myalgic Encephalomyelitis and the strikingly similar symptoms within one subset of Long Covid patients. It is an honest portrayal of loss, resilience, and the long struggle for...
Irish Independent:
https://www.independent.ie/entertainment/books/book-reviews/adhd-is-a-business-as-well-as-a-medical-disorder-irish-doctor-on-the-dangers-of-overdiagnosis/a586398049.html
https://archive.is/spXmx
‘ADHD is a business as well as a medical disorder’: Irish doctor on the dangers...
https://cdn.fortuneonline.org/articles/post-covid-syndrome-and-cognitive-dysfunction-ndash-aetiology.pdf
Post Covid Syndrome and Cognitive Dysfunction – Aetiology and Possible Treatment
Bansal CJ* and Bansal AS+
Abstract
Background:
Cognitive dysfunction is not infrequent after recovery...
NickyProctor @NickyProctor
Here are slides from the talk I gave to 30+ nurses & doctors of @YSTeachingNHS.
None of this lovely group had received any training about #ME - this is not unusual.
Feel free to use & share...
https://worcsmegroup.weebly.com/blog/yawn-a-play-during-mecfs-awareness-month
YAWN a play during ME/CFS AWARENESS MONTH
11/3/2025
YAWN will debut at the Cheltenham Fringe Festival, at 5.00 pm, on Tuesday 27 May.
Hollie Christian-Brookes, an actor-singer, with puppetry and stage combat...
https://www.openaccessgovernment.org/article/common-data-elements-to-advance-me-cfs-research/189538/
Common data elements to advance ME/CFS research
First Published: 11th March 2025
Last Modified: 11th March 2025
Standardizing data collection in ME/CFS research through Common Data Elements...
https://www.linkedin.com/pulse/iacfsme-2025-conference-prepare-amazing-abstract-submission-iacfsme-vwk3c/
IACFS/ME 2025 Conference: Prepare an Amazing Abstract for Submission!
International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME)
277 followers
March 12...
https://csiro.qualtrics.com/jfe/form/SV_50apVQ5MHXTReBw
Are you living with, caring for, or treating someone with Long COVID or Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS)?
We want to hear from you!
The Australian E-Health Research Centre (AEHRC) and Monash University have...
Facebook post today:
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NCNED is inviting people with ME/CFS, people with long COVID and healthy volunteers to participate in ongoing and upcoming research projects at our Centre, including our clinical trial investigating Low-Dose Naltrexone (LDN) as a potential treatment for long COVID.
We...
Quick extraction of text from image
NATIONAL CENTRE FOR NEUROIMMUNOLOGY AND EMERGING DISEASES
LOW DOSE NALTREXONE FOR THE TREATMENT OF POST COVID-19 CONDITION
Project Overview
Long COVID describes the presence of various COVID-19 symptoms three months after infection lasting for at least two...
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