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  1. Dolphin

    Health-related quality of life in [ME/CFS] and [PCC]: a systematic review, 2025, Weigel+

    ME Research UK: A team of researchers in Australia – including Dr Kiran Thapaliya, Professor Sonya Marshall-Gradisnik, and Dr Natalie Eaton-Fitch who are also currently working on research funded by ME Research UK, have reviewed existing evidence relating to quality of life – the degree to...
  2. Dolphin

    Review Dysregulation of lipid metabolism, energy production, and oxidative stress in [ME/CFS], [GWS], and Fibromyalgia, 2025, Davis, Morten et al

    ME Research UK: A review paper from Dr Karl Morten’s team has highlighted that “complex chronic illnesses” ME/CFS, fibromyalgia, and Gulf War Syndrome (GWS) not only have common symptoms such as fatigue and pain but also display “significant overlap in the molecular and cellular disruptions”...
  3. Dolphin

    Open Master’s Thesis: seeking perceptions about chronic fatigue syndrome in the workplace from working people who both have and do not have ME/CFS

    I haven’t vetted this https://www.mecfsresearch.nz/ ME/CFS Research Kia Ora, my name is Sarah Jansen, and I am a student at the Southern Institute of Technology in Invercargill, Master of Applied Health Sciences (Wellness and Rehabilitation). I am seeking perceptions about chronic fatigue...
  4. Dolphin

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    https://padlet.com/katha1970_/personal-collection-of-information-for-patients-with-complex-p20bhx4pb54x1may/wish/2998552241 Summary of the #UniteToFight2024 conference by @katha1970 (on Twi@er/X) First International Conference on Long Covid and ME/CFS #UniteToFight2024 marks a turning point in...
  5. Dolphin

    Well-known, famous people with Covid-19 and Long Covid

    I’ve just remembered Gary Frankum, a UK speedway rider with ME, who raised quite a bit of awareness at the time. Haven’t heard anything about him in years.
  6. Dolphin

    News from Belgium

    Post-Covid Awareness Day in Belgium: Protest Belgian patients. Go to (Google translation from Dutch to English), https://www-bruzz-be.translate.goog/actua/gezondheid/long-covid-patienten-houden-ligbetoging-voor-betere-zorg-artsen-ontkennen-soms?_x_tr_sl=nl&_x_tr_tl=en&_x_tr_hl=en
  7. Dolphin

    Risk, determinants, and persistence of long-COVID in a population-based cohort study in Catalonia, 2025, Kogevinas et al

    News Release 13-Mar-2025 Symptoms of long-COVID can last up to two years after infection with COVID-19 According to a study of the COVICAT cohort, almost one in four people infected with SARS-CoV-2 suffered from long-COVID Peer-Reviewed Publication Barcelona Institute for Global Health...
  8. Dolphin

    Northern Ireland: News from Hope 4 ME & Fibro

    Hope 4 ME & Fibro NI Two Lives – One Story is a deeply personal video that reflects the reality of those living with Myalgic Encephalomyelitis and the strikingly similar symptoms within one subset of Long Covid patients. It is an honest portrayal of loss, resilience, and the long struggle for...
  9. Dolphin

    Crowdfunding for David Tuller starts October 1st 2024

    Sorry to hear that. I haven't got any. They do write to me during the year by post from time to time.
  10. Dolphin

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Irish Independent: https://www.independent.ie/entertainment/books/book-reviews/adhd-is-a-business-as-well-as-a-medical-disorder-irish-doctor-on-the-dangers-of-overdiagnosis/a586398049.html https://archive.is/spXmx ‘ADHD is a business as well as a medical disorder’: Irish doctor on the dangers...
  11. Dolphin

    Review Post Covid Syndrome and Cognitive Dysfunction – Aetiology and Possible Treatment, 2025, Bansal & Bansal

    https://cdn.fortuneonline.org/articles/post-covid-syndrome-and-cognitive-dysfunction-ndash-aetiology.pdf Post Covid Syndrome and Cognitive Dysfunction – Aetiology and Possible Treatment Bansal CJ* and Bansal AS+ Abstract Background: Cognitive dysfunction is not infrequent after recovery...
  12. Dolphin

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    NickyProctor ⁦‪@NickyProctor⁩ Here are slides from the talk I gave to 30+ nurses & doctors of ⁦‪@YSTeachingNHS⁩. None of this lovely group had received any training about #ME - this is not unusual. Feel free to use & share...
  13. Dolphin

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    https://worcsmegroup.weebly.com/blog/yawn-a-play-during-mecfs-awareness-month YAWN a play during ME/CFS AWARENESS MONTH 11/3/2025 YAWN will debut at the Cheltenham Fringe Festival, at 5.00 pm, on Tuesday 27 May. Hollie Christian-Brookes, an actor-singer, with puppetry and stage combat...
  14. Dolphin

    Common data elements to advance ME/CFS research, 2025, Enger et al

    https://www.openaccessgovernment.org/article/common-data-elements-to-advance-me-cfs-research/189538/ Common data elements to advance ME/CFS research First Published: 11th March 2025 Last Modified: 11th March 2025 Standardizing data collection in ME/CFS research through Common Data Elements...
  15. Dolphin

    October 2025 IACFS/ME Conference

    https://www.linkedin.com/pulse/iacfsme-2025-conference-prepare-amazing-abstract-submission-iacfsme-vwk3c/ IACFS/ME 2025 Conference: Prepare an Amazing Abstract for Submission! International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) 277 followers March 12...
  16. Dolphin

    Open 2025 Australia: a survey to understand the research priorities of those experiencing, treating or caring for someone with ME/CFS and/or long-COVID

    https://csiro.qualtrics.com/jfe/form/SV_50apVQ5MHXTReBw Are you living with, caring for, or treating someone with Long COVID or Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS)? We want to hear from you! The Australian E-Health Research Centre (AEHRC) and Monash University have...
  17. Dolphin

    Open Australia-wide: LOW DOSE NALTREXONE FOR THE TREATMENT OF POST COVID-19 CONDITION

    Facebook post today: - NCNED is inviting people with ME/CFS, people with long COVID and healthy volunteers to participate in ongoing and upcoming research projects at our Centre, including our clinical trial investigating Low-Dose Naltrexone (LDN) as a potential treatment for long COVID. We...
  18. Dolphin

    Open Australia-wide: LOW DOSE NALTREXONE FOR THE TREATMENT OF POST COVID-19 CONDITION

    Quick extraction of text from image NATIONAL CENTRE FOR NEUROIMMUNOLOGY AND EMERGING DISEASES LOW DOSE NALTREXONE FOR THE TREATMENT OF POST COVID-19 CONDITION Project Overview Long COVID describes the presence of various COVID-19 symptoms three months after infection lasting for at least two...
  19. Dolphin

    Pedantic Zebra Book Club - (disability & chronic illness based)

    Recording: According to this tweet: it covers the Lightning Process.
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