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Of interest? Comparative Analysis of Lymphocytes in Lymph Nodes and Peripheral Blood of Patients with Chronic Fatigue Syndrome https://www.tandfonline.com/doi/abs/10.1300/J092v07n03_06

https://www.medrxiv.org/content/10.64898/2025.11.27.25341182v1 An informatics approach to profiling patient experiences using electronic health records: constructing and clustering the burden space of individuals under 65 years of age with multiple long-term conditions View ORCID ProfileMozhdeh...

Virtually all of this is in English https://repositorium.meduniwien.ac.at/obvumwhs/content/titleinfo/12965200/full.pdf

Purnat T D, Scales D. Health information in age of social media and influence BMJ 2025; 391 :r2419 doi:10.1136/bmj.r2419 Free fulltext: https://www.bmj.com/content/391/bmj.r2419.full Contains this paragraph:

It seems possible that part or all of the reason for the difference between the 2 groups in the primary outcome measure, the Incremental Shuttle Walk Test, is because people in the intervention group could be more willing to push themselves? Perhaps they are more motivated to prove that all...

Probably the more relevant figure in terms of discussing the intervention is the intervention group distance at 3 months which was an average of 396 m (and median of 350 m) All Standard Care Intervention ISWT distance at 3m follow-up (m) N (NMISSING) 193 (2) 99 (1) 94 (1) Mean (SD) Median...

I notice that twice the number in the intervention group withdrew compared to the control group (16 vs 8). Did anyone find any more information on this in the supplements? 116 Randomized to control group 100 Completed 3-mo follow-up 9 Withdrew 8 Participant decision 0 Adverse event 0 Physician...

Of the four I mentioned: Sonya said something along the lines that her son got ill with ME after she applied for the job, it was a fluke she has such a personal connection. Chris Clark had no stated personal knowledge and behaved like someone who didn’t have good insight into the condition. I...

I know the popular view around here is the CEO approach but I have to wonder how much Sonya Chodhury is influencing people’s thoughts. It is an unusual scenario that she has a child with the condition. There have been CEOs before like Chris Clark (AfME) and Mary-Jane Willows (AYME) who made a...

Yeah, wasn’t sure whether it should go in this subforum or not.

Free fulltext https://link.springer.com/article/10.1186/s12913-025-13857-5 Information exchange or discussion? A qualitative study on cross-sectoral collaboration between social security service and healthcare service for patients with chronic fatigue Research Open access Published: 09...

New URL for the All-Party Parliamentary Group on ME https://publications.parliament.uk/pa/cm/cmallparty/251201/myalgic-encephalomyelitis-me.htm

We need a national fibromyalgia care pathway – why is the NHS dragging its feet? Last Updated: December 6, 2025By Mike Sivier https://voxpoliticalonline.com/2025/12/06/we-need-a-national-fibromyalgia-care-pathway-why-is-the-nhs-dragging-its-feet/

https://www.bbc.com/news/articles/c3d0xex4078o 'I want to live my life': Fibromyalgia sufferers being failed by NHS 28 November 2025 Fiona Stalker BBC Scotland, Aberdeen

https://www.eurekalert.org/news-releases/1109211 News Release 10-Dec-2025 Could hidden infections be fueling long COVID? Peer-Reviewed Publication Rutgers University For millions suffering from long COVID, their persistent breathlessness, brain fog and fatigue remain a maddening mystery, but...

https://bmjopen.bmj.com/content/15/11/e102112.responses#in-the-long-run-misleading-participants-will-harm-more-than-help-in-long-covid-research Published on: 9 December 2025 In the Long Run, Misleading Participants Will Harm More Than Help in Long COVID Research Todd E. Davenport, Professor &...

https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2583734 Rehabilitation providers’ experiences with long COVID care in Canada: a qualitative study Jaylyn Leighton, Isabel Heldmann, Kate Van de Ven, Logan Reis, Abirami Vijayakumar, Robert Simpson, Michelle LA Nelson, Christine...

I have just come across this website after it was recommended by a patient. I have been following her for a while on Threads and found her to have a much better understanding of long Covid and ME/CFS than the vast majority of health professionals. But I never followed up to find out more about...

Emerge Australia Facebook: Parliamentary Friends of ME/CFS Announced! Our Group begins it’s advocacy for the 48th Parliament, bringing together 20 members of Parliament, including co-chairs Dr Mike Freelander MP and Senator Jordon Steele-John, as well as ME/CFS advocacy groups and community...