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ME Association: The official minutes from the first joint ME and Long Covid APPG meeting are now available! https://appgme.co.uk/meetings/minutes-for-appg-meeting-14-may/ Stephen Timms, Minister for Social Security and Disability, joined the first part of meeting which focused on the...

U.S. Federal Register: Rehabilitation Long-Term Training Program: ME/CFS Source: U.S. Federal Register Vol. 90, #115, pp 25493-25494 Date: June 17, 2025 URL...

ME Research UK: A study considering the views of 13 people with “CFS/ME” and (or) fibromyalgia in relation to remote medical appointments – such as those conducted online or telephone – has highlighted the importance of “feeling heard, valued, and believed” by health professionals – whether...

On a forum I'm on, someone recently mentioned they felt improvements with the Lightning Process. Aside: I believe testimonials for the LP are one of the least reliable given you are trained to say you are doing well and not mention impairments or symptoms. Anyway one person respond by simply...

https://www.tandfonline.com/doi/full/10.1080/23311908.2025.2517870#abstract Cogent Psychology 2025, Vol. 12, no. 1, 2517870 Exploring barriers and facilitators to effective self-management in individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: an Interpretative Phenomenological...

https://link.springer.com/article/10.1186/s12875-025-02891-1 Physicians’ experiences of assessing and supporting fatigued patients in primary care: a focus group study Research Open access Published: 09 June 2025 Volume 26, article number 197, (2025) Conrad Samuelsson, Lisa Gunnarsson...

https://www.sciencedirect.com/science/article/abs/pii/S0277953625006446 Social Science & Medicine Available online 10 June 2025, 118313 Chronicity rhetoric in health and welfare systems inhibits patient recovery: a qualitative, ethnographic study of fibromyalgia care Caroline Cupit 1...

A sentence from it: New diseases may arise, for example, from new causes (COVID-19), advances in diagnostic technologies (early-stage cancers), or conscious advocacy (chronic fatigue syndrome)

All the presentations at the above link for the symposium are in German but this new link has links to recordings of the conference which are all in English. https://events.mecfs-research.org/en/events/conference_2025/videos Charité – Universitätsmedizin Berlin and the ME/CFS Research...

https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/2835077 Viewpoint Less Is More The Impact of Definitions of Disease on Overdiagnosis Kari A. O. Tikkinen, MD, PhD1,2,3,4; Alex L. E. Halme, BSc1; Gordon H. Guyatt, MD4,5; et al Paul Glasziou, MD, PhD6 Author Affiliations...

This other study was part of INSPIRE: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After SARS-CoV-2 Infection https://www.s4me.info/threads/myalgic-encephalomyelitis-chronic-fatigue-syndrome-after-sars-cov-2-infection-2024-unger-et-al.39493/ The sample sizes look different so I'm not...

https://www.eurekalert.org/news-releases/1086706 News Release 10-Jun-2025 People with COVID-like symptoms took up to nine months post-infection to regain mental well-being Physical well-being, by contrast, returned after three months; up to 20% of patients continued experiencing suboptimal...

https://academic.oup.com/ofid/article/12/6/ofaf278/8154758 Journal Article Association of SARS-CoV-2 With Health-related Quality of Life 1 Year After Illness Using Latent Transition Analysis Lauren E Wisk , Michael Gottlieb , Peizheng Chen , Huihui Yu , Kelli N O’Laughlin , Kari A Stephens ...

Someone with CFS and Fibromyalgia was on Scottish tv https://s4me.info/threads/on-chronic-pain-a-role-for-proprioceptors-in-sngception-2025-lee.44498/post-615207

https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/s12911-025-03034-3 Research Open access Published: 03 June 2025 Visualizing fatigue mechanisms in non-communicable diseases: an integrative approach with multi-omics and machine learning Yusuke Kobayashi, Naoki Fujiwara, Yuki...

Graphical abstract Data from a large population-based prospective cohort study was used, where a multiplex serology panel measured serum immunoglobulin G antibody levels against 20 infectious agents at baseline. Chronic pain in the knee, neck/shoulder, hip, back, or ‘all over the body’ was...

News / North East & Tayside University makes 'ground-breaking' discovery offering hope for chronic pain sufferers Researchers hope the breakthrough will lead to new treatments for conditions such as fibromyalgia and rheumatoid arthritis. Research: University makes 'ground-breaking discovery'...

I found this by Dr Shepherd himself: https://meassociation.org.uk/2021/08/dr-charles-shepherd-stands-down-nice/ He was stood down.

I haven't read this paper so far but it reminds me of this paper by Peter White where they analyse what is presented in different fora and then claim views that are not their own are incorrect or something similar. https://pmc.ncbi.nlm.nih.gov/articles/PMC3572659/ JRSM Short Rep . 2013...