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�Big news! Simmaron Research is the winner of our latest Solve #MECFS Catalyst Award! We’re proud to provide funding for their clinical trial “Low Dose Rapamycin in ME/CFS, Long-COVID, and Other Infection Associated Chronic Conditions (NCT06257420).” Congratulations to Dr. C. Gunnar Gottschalk...

https://www.frontiersin.org/journals/health-services/articles/10.3389/frhs.2025.1562651/full ORIGINAL RESEARCH article Front. Health Serv., 27 June 2025 Sec. Implementation Science Volume 5 - 2025 | https://doi.org/10.3389/frhs.2025.1562651 Assessing the influence of lived-experience experts...

ME Research UK: Sleep difficulties are a common and frustrating feature of ME/CFS, with individuals reporting a wide range of sleep disturbances. Using a dataset of over 2000 individuals with ME/CFS, researchers at DePaul University (USA) investigated a specific sleep disturbance: sleep...

https://www.sciencedirect.com/science/article/abs/pii/S1542012425000850 The Ocular Surface Volume 38, October 2025, Pages 64-71 Heightened visual light sensitivity discomfort measured by the ocular photosensitivity analyzer is associated with chronic ocular pain Ema V. Karakoleva a b c...

https://academic.oup.com/jpepsy/advance-article-abstract/doi/10.1093/jpepsy/jsaf048/8169988?redirectedFrom=fulltext Journal Article Anxiety in children and adolescents with chronic physical health conditions: an updated meta-analysis Martin Pinquart, PhD , Alexander Thorwarth, BSc Journal of...

Following confirmation of PCS, differential diagnosis must consider syndromes such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and functional somatoform disorders [9]. Although these conditions share symptoms—fatigue, cognitive impairment, and emotional lability—PCS is...

https://ulopenaccess.com/papers/ULMHS_V03I02/ULMHS20250302_010.pdf Post-COVID Syndrome in Pediatric Patients: Clinical Manifestations, Diagnosis, and Management Strategies Sultan Fariza Graduate of the Residency Program in Infectious Diseases, including Pediatric Infectious Diseases, at...

Full text now published: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2025.1562084/full

(copied from: https://forums.phoenixrising.me/threads/me-cfs-research-chatbot.93488/ ) Introducing the ME/CFS Research Chatbot! It's meant to provide a reliable, accurate, and up-to-date summary of published research for the general public. While general LLMs like ChatGPT and Claude might...

This is one person based on my unreliable memory who I would be a bit worried about: Dr Carolina Sandler Senior Lecturer, School of Health Sciences, UNSW Accredited exercise physiologist and clinical researcher with research interests being post-infective fatigue states and cancer survivorship...

"Cognitive dysfunction in ME/CFS, its causes, and treatment avenues: a conversation with Dr Amolak S Bansal – Immunologist and Allergist"...

From the latest Institute for Neuro-Immune Medicine at NSU email newsletter COVID-UPP Study We’re nearing the finish line on our important CDC study designed to compare Long COVID to ME/CFS — a vital step toward advancing our mission...

[I wasn't sure which forum to post this in. More information at tabs at link] https://ce.mayo.edu/internal-medicine/content/systematic-approach-medically-unexplained-symptoms-2025#group-tabs-node-course-default2 A Systematic Approach to Medically Unexplained Symptoms 2025 Four Seasons...

News release: "People with ME/CFS have significant differences in their blood compared with healthy individuals, a new study reveals, suggesting a path towards more reliable diagnosis of the long-term debilitating illness" https://www.ed.ac.uk/news/scale-of-how-mecfs-affects-blood-revealed

It’s not just ‘chronic fatigue’: ME/CFS is much more than being tired by Sarah Annesley Published: June 19, 2025 6.09am BST https://theconversation.com/its-not-just-chronic-fatigue-me-cfs-is-much-more-than-being-tired-258803

Health outcomes of patients in the Complex Chronic Diseases Program https://www.s4me.info/threads/health-outcomes-of-patients-in-the-complex-chronic-diseases-program-2025-meagher-nacul-et-al.44679/

[This looks like a pre-print of some sort] https://www.researchgate.net/publication/392596359_Association_Between_Vagal_Tone_and_Functional_Recovery_in_Post-Viral_Fatigue_Syndrome_Following_COVID-19 Association Between Vagal Tone and Functional Recovery in Post-Viral Fatigue Syndrome Following...

Merged thread ------------------ Start on page 174 BC MEDICAL JOURNAL VOL. 67 NO. 5 | JUNE 2025 https://bcmj.org/sites/default/files/BCMJ_Vol67_No5_complete.pdf Health outcomes of patients in the Complex Chronic Diseases Program New approaches and research are urgently needed to improve...

Note that most of this wouldn’t be for medical research. I think sometimes people can forget about all the other R&D expenditure. Think for example about all the academic schools and departments in a university.

From Facebook: ❌ PIP cuts will be devastating for people with #ME and #LongCovid. Our new briefing shows these reforms will push people further from work, deepen poverty, and worsen health. We’re calling on MPs to oppose this! Read the briefing and write to your MP using our guide (link to...