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Please discuss the following article on the 'Criticisms of DecodeME in the media - and responses to the criticisms' thread ------------- https://www.coffi-collaborative.com/post/response-to-decodeme-preprint

https://www.sciencedirect.com/science/article/pii/S0022399925003344 Journal of Psychosomatic Research Available online 3 September 2025, 112370 In Press, Journal Pre-proofWhat’s this? Rasch analysis of the hospital anxiety and depression scale in patients with chronic fatigue syndrome Author...

Merged thread: 'Picturing M.E.' ----------------------------------------- Picturing M.E. published on: September 4, 2025 This blog post looks at how the medical condition M.E. is portrayed in photographs and illustrations that accompany newspaper, magazine and website articles about it. There...

A comment from a poster on Bluesky for what it is worth: I have just completed the severe module. I can’t believe it, but it’s GOOD. The limited access is an issue. What about agency care managers etc? It’s clear, no BPS, has some really crucial stuff. If pts can’t access they can’t use it for...

https://learninghub.nhs.uk/Resource/71269/Item Home Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) elearning Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) elearning Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) elearning Managing severe...

MEA Facebook: Wales: Severe ME Difrifol Cymru need your support! A couple of months ago, Severe ME Difrifol Cymru ran a stall at Y Farchnad (The Marketplace) where they were able to meet with many Senedd Members (MSs) about the issues facing people with severe ME. Now they need MSs to make...

Now published: https://www.s4me.info/threads/pacing-conventional-physical-activity-and-active-video-gaming-to-increase-physical-activity-levels-for-me-cfs-a-pilot-feasibility-study-2025-tarca.46036/

Protocol thread: https://www.s4me.info/threads/pacing-conventional-physical-activity-and-active-video-games-to-increase-physical-activity-for-adults-with-me-cfs-protocol-for-a-pilot-2017-ferrah.29366/

https://www.degruyterbrill.com/document/doi/10.1515/teb-2025-0017/html Pacing, conventional physical activity and active video gaming to increase physical activity levels for adults with myalgic encephalomyelitis/chronic fatigue syndrome: a pilot feasibility study Brett Tarca , Kade Davison ...

https://www.jacc.org/doi/10.1016/j.jacc.2025.06.030 Compression Therapy for Vasovagal Syncope: There May Still Be Hope Pay-walled but one can see the first page at the link.

https://www.jacc.org/doi/10.1016/j.jacc.2025.05.049 Get Access Original Research 4 August 2025 Using Compression Stockings to Prevent Recurrence of Vasovagal Syncope: Authors: Hamed Tavolinejad, Ali Bozorgi, Zahra Emkanjoo, Alireza Oraii, Javad Shahabi, Reza Mollazadeh, Mohamadreza Kiarsi...

ME Research UK e-newsletter – August 2025 ME Research UK's monthly e-newsletter is now available online - https://tinyurl.com/3pxneb26 Wish to receive future issues via email - sign-up today - https://tinyurl.com/jdvkd6w7

Pharma is making fairly minimal amounts from ME/CFS patients now. A lot of the drugs that are used are generic, where there are minimal profits while most drugs with patents are taken by low percentages of patients. It may be the case that pharma has no incentives to find cures. But cures...

[If there had been an education forum, this might fit better there] https://link.springer.com/article/10.1007/s13384-025-00894-6 Exploring the experiences of undergraduate students with disability who withdraw from university studies Open access Published: 26 August 2025 (2025) Cite this...

Now published: https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2025.1637838/full

https://www.preprints.org/manuscript/202508.1805/v1 Gulf War Illness, Fibromyalgia, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Overlap Common Symptoms and Underlying Biological Mechanisms: Implications for Future Therapeutic Strategies David Mantle*,†,Joan Carles Domingo†...

Journal Article Accepted manuscript https://academic.oup.com/ehjcr/advance-article/doi/10.1093/ehjcr/ytaf425/8244178 Monitoring of Cardiorespiratory Vagal Desynchrony Using Novel Biomarkers Derived from Smartwatch ECGs in a Patient Recovering from Long COVID – Case Report Open Access...

https://www.mdpi.com/2227-9059/13/9/2102 Mechanistic Insights into a Self-Management Intervention in Young Adults with Irritable Bowel Syndrome: A Pilot Multi-Omics Study by Weizi Wu 1, Jie Chen 2, Aolan Li 3, Ming-Hui Chen 3, Angela Starkweather 4and Xiaomei Cong 1,*<i></i> 1 Yale...