ME Research UK:
The ‘burden’ of a disease – the impact that a health problem has in a population – has been found to be high for ME/CFS in countries such as Australia, US, and Germany. However, less is known about the impact of the disease internationally.
Therefore, a team of researchers in...
The letter is now published (but it’s behind a paywall):
Letter to the Editor
Letter to the editor: analysis of memorial records to examine mortality in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
Erin Cvejic
Published online: 29 Sep 2025
Cite this article...
As some of the people reading this thread probably haven’t followed the link, I thought I’d re-post the information here:
—-
I don't have another link for this that discusses the documentary in English
Documentary: Undercover in German Lyme Clinics (2017)
Short summary:
Several totally healthy...
Source: Swiss parliament Date: September 18, 2025 URL: Google translation from German to English
https://www-parlament-ch.translate.goog/de/services/news/Seiten/2025/20250918124515608194158159026_bsd101.aspx?_x_tr_sl=de&_x_tr_tl=en&_x_tr_hl=en Ref...
A lot of people in general seem to think that research is what governments pay for, that’s what they pay taxes for. As I have tried to argue before (and often not made myself popular for doing so), outside the US, government research budgets are relatively small compared to the size of the need...
Free full text:
https://academic.oup.com/braincomms/advance-article/doi/10.1093/braincomms/fcaf366/8262587
Evidence of clinical and brain recovery in post-COVID-19 condition: a three-year follow-up study
Ravi Dadsena, PhD, Sophie Wetz, Anna Hofmann, MD, PhD, Ana Sofia Costa, PhD, Sandro...
“This is reminiscent of an argument put by Illich, one of the earliest and most polemic critics of medicalization, who warned that the capacity of individuals and societies to care for themselves and cope with sickness, pain, and death would be undermined by medicalization (Illich 1975). In his...
I haven’t read this. I just thought I’d highlight it due to the mention of CFS (see post #2)
https://link.springer.com/article/10.1007/s11673-025-10460-5
An Ethical Analysis of Medicalization and Infant Mental Healthcare
Izaak T. Lim
Abstract
The field of infant mental health has been met...
Programme: Focus (Dutch science programme)
Station: NPO-2 TV
Date: October 21, 2025
Time: 19:00-19:30 UTC
Live TV: https://npo.nl/start/live?channel=NPO2
WebTV: https://npo.nl/start/serie/focus
URL: Google translation from Dutch to English...
Her profile on Twitter:
Liza DiLeo Thomas, MD
@lzzza3
Mom of five, emergency medicine doc, long hauler, passionate about patient experience and physician wellness.
https://www.ochsnerjournal.org/content/25/3/152
Open Access
When We Don’t Have All the Answers: Long COVID and the Need for Humility in Medicine
Liza Di Leo Thomas
Ochsner Journal September 2025, 25 (3) 152-158; DOI: https://doi.org/10.31486/toj.25.0074
https://link.springer.com/article/10.1007/s00520-025-09941-5
Fatigue of Cancer is Distinctly Different than the Fatigue of Chronic Kidney Disease
Research
Published: 23 September 2025
Carlos Fernandez,
Alexander R. Chang,
Erin VanEnkevort &
Mellar P. Davis
86 Accesses
Explore all...
https://www.eurekalert.org/news-releases/1099143
News Release 25-Sep-2025
While it may go unnoticed, loss of smell may linger for years after COVID-19
Peer-Reviewed Publication
NYU Langone Health / NYU Grossman School of Medicine
People who suspect that their sense of smell has been dulled...
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2839325
Original Investigation
Otolaryngology
Olfactory Dysfunction After SARS-CoV-2 Infection in the RECOVER Adult Cohort
Leora I. Horwitz, MD, MHS1,2; Jacqueline H. Becker, PhD3; Weixing Huang, MSPH4 et al
JAMA Netw Open...
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