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Hi Valerie, sorry for taking a while to reply – had a crash unfortunately but hopefully working my way back to baseline now. That’s really sad and frustrating to hear that despite trying to get the ME charities to hear you, you weren’t listened to. I’m very glad that the charities exist, but...

Hi Valerie, Thanks very much for your reply and for the immense amount of work you’ve done for our community! It makes me feel hopeful to see such strong, sensible and thorough planning but also sad that it feels so far from being actioned. I worry that it’ll take the rest of my life to see...

Thank you for all you and others are doing, I really appreciate it. I hope I may be in a position to help more at some stage.

Does anyone know if this in motion at all? https://valerieeliotsmith.com/2022/03/16/a-manifesto-for-change-from-strategy-to-inquiry/ I saw this post so wasn’t sure: https://valerieeliotsmith.com/2022/09/06/ten-years-on-somewhere-towards-the-end/ I would love to support the cause but am severe...

Couple more resources for the journalist in case they’re helpful: https://www.s4me.info/threads/who-is-simon-wessely.9364/page-37 https://www.inclusionlondon.org.uk/campaigns-and-policy/act-now/letter-prime-minister-reconsider-appointment-professor-simon-wessely/...

Oh also… Info about the ME papers that were originally sealed for 75yrs (usually it’s 30 and 75 is apparently highly unusual): https://www.dailymail.co.uk/debate/article-2141230/All-mind-Why-critics-wrong-deny-existence-chronic-fatigue.html...

Very best of luck speaking with the journalist, I’m bedbound 95% and I appreciate what you’re doing so much. Here’s a video from a whole back where Ean Procter is interviewed: Also here’s a website with lots of solid sources which I hope will be helpful...

Hi everyone! I haven’t posted here before but have learnt a lot from reading in the past few years - so thank you! (And please say if I’ve posted anything wrongly, hoping I haven’t!) I’m hoping for some help on a couple of questions revolving around acetylcholine. Quick background: I...