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Very sorry to hear this news @Dx Revision Watch - your expert opinion should be listened to, and I’m sorry that it hasn’t been/won’t be by this group. Thank you for keeping us updated here.

QMUL should read that blog and hang their heads in shame. Oh Alem......:cry:

Can iplayer be accessed from overseas?

I’m sure the irony of writing that 11/16 fibro patients failed to attend all the sessions, and also that patients need help to engage in ‘their rehabilitation goals’ has completely passed them by. Non-compliance/non-adherence - or whatever damn thing you want to call it - is simply the...

Fingers crossed for you @TrixieStix that you get improvement...

Great t-shirt @Mike Harley - I love it!

If MS believes his ‘job is to write clear papers’ then he must have sleepless nights over PACE.... are there many papers less clear?

I’d heard of ME before I got sick, but the general thread of what I ‘knew’ was around the whole ‘yuppie flu’ thing. Now some people might call me contrary but I like a quiet, non-confrontational life, so there’s no way I’d have ‘chosen’ ME.

Apologies if this is a dumb question... but I’m not sure I am totally clear about what you are saying @Jonathan Edwards ... If B cells are switched on by diseases, does that mean that the more diseases you have had/the more your B cells have been switched on, the more likely you are to develop...

77% now - some lovely person has just donated $500 .....

:rofl::rofl::rofl:

But - if we ‘choose how active to be’ - then surely the actometer results should mirror the CBT and GET results, given that those two treatments are specifically designed to help us ‘understand’ that we can be more active..... So - by the rationale for PACE, it makes no sense to remove the...

#sharpendofME

I think we’re damned if we do and damned if we don’t..... The public perception of pwme has been so influenced by the bps brigade and the media and government support for their ideology, that if we shout out, we run the risk of feeding their narrative. It’s a horrible but clever trap that we...

I had visions of EC doing a lecture and finding the whole audience was DT clones!!!!!

Great news!

So glad the prednisone is helping... fingers crossed for the Plaquenil!

Donated - thank you @dave30th - loving your work!

So essentially PACE was a trial of how to stop those pesky patients from complaining? Obviously actual activity didn’t need to be measured - because the patients could be active if they wanted... This seems to prove that GET is just physical CBT in their minds. Fatigue is only subjective and...

It is also absolutely possible to be hyperthyroid and still have ME symptoms - although that rather surprises the doctors...