Search results

Thanks for this info @Kitty. It sounds like I’ve been taking them differently to you. I started out on a daily dose as per the bottle, which was 2 tablets. Weirdly I felt too wired and I reduced the dosage to half. I was taking this as well as a vegan protein shake and I really felt it made me...

I’m wondering if you would share what dose you take @Kitty ? I started on a small daily dose of BCAAs after having what seemed to be a positive affect from whey and then vegan protein. I wonder if I have taken too much as I crashed about a month ago, and I’m currently weighing up whether to...

I don’t think I can describe what I have as Tinnitus. However, I do have a feeling of fluid in my ear which seems to increase when I have a spike in other symptoms. There is bubbling, popping and crackling. No wax so not that. My ME/CFS started 6.5 years ago and I had ear pressure problems on...

Thirty years ago I trained as a mental health nurse. I was utterly against ECT. But then I saw it work for people who were very seriously depressed. Nothing else worked in some instances, but ECT did. I’m still not sure how I feel about it but I can’t deny the difference it made to people’s lives.

This thread also reminded me I don’t think I had migraine as part of a crash in the first stage of my illness. I had crashes and I had migraines but not together. Now if i overdo it the migraine feeling is the most overwhelming, but it feels like the migraine is all over my body in a different...

This thread reassures me strangely. It always helps to see others with the same symptoms. It reminds me how real this illness is. I can go for weeks without a crash but I’m in one now. I don’t think I’d be able to describe how I felt if I wasn’t in the midst of it. I feel as if my whole system...

@Wonko apologies I posted right at the start of his thread, but I made no sense and seemed to lose the capacity for editing. So I deleted the whole post. I wanted to say I recently lost at upper tribunal and wished I hadn’t attended, for the similar reasons you don’t want to attend yours. I...

This is an interesting question. I know I’m better than in the first couple of years because some days I do wake up feeling ready to get up, with some energy for the day ahead. However these are the days that I will overdo everything (not doing a huge amount and nothing like a ‘healthy’ person...

Thanks for starting this thread. I’m afraid I find the detailed science almost impossible to follow but I am trying! I tried whey too and it really did seem to increase my energy. I found it made me feel unwell in other ways though and wondered if it was all the extra crap in the product I was...

And it was ever thus with the NHS and Social Care in this country. Everything moves so slowly and by the time things change other things have overtaken them in terms of need. But yes celebratory emojis all round :balloons::couchpotato:cake::party:

Yes I do agree. I’m one of the lucky ones who is still prescribed it, although I expect it to stop at any time. It’s made a real difference to my stamina and level of functioning. I’ll join you with the fingers crossed

Well the warnings haven’t entirely been waved away, otherwise the CMA wouldn’t have found as it did. The sole reason that the NHS is in the process of banning T3 is the cost. If it was as cheap as levothyroxine they wouldn’t have a problem with it. The NHS can say of any drug that the benefits...

Competition and Markets Authority has provisionally found that the NHS has been massively, massively overcharged for T3 https://www.gov.uk/government/news/drug-company-accused-of-abusing-its-position-to-overcharge-the-nhs

There is such a thing as activity induced migraine. It’s recognised as a trigger by neurologists. I wonder if you could approach this by saying activity seems to be the biggest trigger, and how frustrating and limiting that is. You don’t actually need to mention ME at all. I’ve only recently...

I clicked the first one. However, I find it very hard to judge how I am overall as I’ve noticed I tend to do so depending on how I am at the time. So, for the last couple of months I have been feeling bad after a few months of feeling probably the best I have since I first got ill 5 years ago...

Wow @alicec that is really helpful and really useful information- thank you! Coincidentally I switched on radio 4 this afternoon and caught the end of somebody discussing ‘the British Gut Project’ which offers testing as part of a research project. I’m thinking about it, but having read a bit...

I can't afford testing. However, I am convinced by some of the recent research around how the microbiome affects depression and other things (I know there are 'other things' but can't remember what (brain fog). I have also read that the best thing for the microbiome is to eat as diverse a...

I find the articles (eta in Psychology Today) easy to read, although hit and miss in quality. I find them helpful for explaining things on a very basic level, and I have to say I think this article does well for that. I also know from my own experience that Psychology Today comes up a lot in...

Doesn’t it come from medical jargon? (aside from the literal French translation which I understood from my school French to mean ‘illness’, although I’m thinking now that might be ‘malade’) I think I have understood it to refer to a general feeling of unwellness, that feeling you get when you...

@Woolie Thank you so much! Apologies to all as this was a really interesting and valuable thread but I hadn’t considered it might be viewed or accessible just from a google search. Going to delete some posts/ might take me some time as I’m crap at this sort of stuff!!