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Plus he mentions a poll.... I wonder how many respondents there were.

Many thanks indeed for digging this out! That settles that. But I think that it's the mouthful of words that made people chuckle, I think....? Difficult to objectively say. But it doesn't make me positive about it.

It would be another fudge. But it's not the fact that it's a fudge that causes harm. It's the words within the fudge. I'll leave that there, as it becomes circular.

Agreed with all, but with the observation that CF and CFS remain prejudicial socially powerful terms.

And thank you @Dx Revision Watch for all these very detailed replies

Definitely. Never in doubt :) The officialised terminology that there currently is, is the officialised terminology. It is an important point

I do like this.... I would honestly like absolutely any acronym that expunges CF from the illness name. I'll leave it to that other thread linked at the start of this thread, but to still have the term ME, or any term, without killing the social language validity and clarity of CF or CFS will...

Of course, different field. And you're a crack assassin in officialdom.

I'd also add that a social name change and rebrand can start whenever we start the process viably. (Not an argument for SEID specifically)

Many thanks indeed. The distinction to be drawn is between officialdom and health stats on one side Vs everyday spoken and written language on the other. There is fat overlap and a symbiotic relationship of one leading and holding back the other, definitely. There is thus a chicken and egg...

That's v interesting.... Do you remember what exactly they laughed at? Was it the immediate wording, before any explanation? Or were they laughing at it along the lines of "that's just chronic fatigue syndrome"? I'm trying to get a handle on the instinctive emotional reaction to the term...

Def is. My understanding from @Dx Revision Watch's other threads is that there is some optionality as to when and how WHO structures are imported locally. Would be interesting to know more about how that does or doesn't happen or gets nuanced. I would imagine it's something to do with...

I am also thinking about how the UK leads the spirit of the problem....

Beyond what I manage to absorb from your expert posts, I am ignorant of this. I hadn't noticed the point you just made when I peeked at the databases myself after your other threads - thanks for highlighting. How did the NHS/NICE use of ME/CFS fit into this?

Lots of potential for a Snoop Dog piece in that ensemble :emoji_microphone:

(Thread renamed to accommodate that for further clarification and moderation purposes)

I follow your lead proudly then :) Absolutely. With similar gains in wider society, of which medics, scientists, funders, relatives, neighbours, politicians and lawyers are a part.

The fudge may go on for another generation, for all we know. There is no reason to assume not, at this point IMO. ME is mixed in value as a term, sure. SEID is merely descriptive, but in a better way and without the inescapable connotations of "CF" that we are entirely captive of. Entirely...

(Rooted in two posts here: https://www.s4me.info/threads/winning-by-taking-ownership-of-the-me-terminology-and-owning-the-language.13787/page-3#post-240154 and...

ME/SEID would be definitionally appropriate on literal terminological grounds, if associated with superior diagnostic criteria, such as the CCC or ICC. This would appear to be an improvement vs stigma, accurate understanding etc. for NICE purposes and actually offer a solid measure to adopt...