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Did the fact that the UK based biobank depended on the US NIH cause discussion or potential action? It is of huge practical example for advocacy purposes in the UK, IMO (which also helps raise standards everywhere). The 'shaming' opportunity should be used and repeated ad infinitum @EspeMor...

I used Mindmapper in the past on Windows. Now I use XMind. Well, always used to, pre-ill. Tricky now.

Thank you moderator Super human powers IMHO :yum ;)

I think this is better here:

...also applies to psychologists. Some are gifted and valuable, but many are not exactly the smartest or most able. In a profession where raw intuition combined with knowledge is key, that is worrying.

I think the value of physiotherapy depends on context and medical history. Some people enjoy a placebo effect, some need and benefit from it. I have another huge concern. Low barriers to entry. Too many para-medical, physiotherapists, psychs, etc. are of a very poor standard, IMHO. Secondary...

Corporate funding plays a huge role in certain scientific research. This depends on the profit motive, a business opportunity. I believe LDN research is relatively sparse because naltrexone is generic'able. No-one cares enough to throw big money. That's what the LDN Trust say. Is this a...

I am no longer 'in the law', but can share a few things regarding legal process so we can keep perspective about what's feasible, and how, in nearly every country. Otherwise, people can understandably get too passionatly idealistic about what is moral, as opposed to what's possible. And things...

This. Extremely important. Advocacy, £$€¥ logistics, legal processes and governmental mechanisms differ widely. Needs people on the ground. Some places will end up depending on or being driven be examples in bell-weather countries. Some countries will be easier meat than others.

This. Cancer research seems to a prime example of private charitable research organizations successfully seeding and building momentum, which larger grants can then ride.

Wow. I can relate to so much of this. My existence used to be synthesising massive numbers of things into an overarching vision, insight or strategy in my head. Lateral thinking writ large. Putting things down in a communicable form was onerous. Now that is a nightmare. And switching tasks, or...

Moderator note: new thread started from post in this existing thread. https://www.s4me.info/threads/plunging-grant-application-rates-test-nih’s-commitment-to-chronic-fatigue-syndrome-me-cfs.8696/page-5#post-154200 Wow. I can relate to so much of this. My existence used to be synthesising...

This

Imagine combining all that with both biobank data and samples... Gold mine of feasible data. And biobank is NIH funded... Nice ROI (return on investment) :)

Oh. That's sad. Can that be documented in detail?

I.e. is it really the NIH's fault per se?

I might be misinterpreting, but this lack of applications reads like a lack of awareness. Sharpe et al's recent lies won't help either... I'm not in the loop. Could this be construed and marketed as a pot of unspent allocated cash that researchers should be excited to apply for? There are never...

My apologies. I had intended to make the point that this is ammunition to throw back in the face of the government department and ministers themselves. this is because they rightly delegate via primary and secondary legislation, but they do retain overall authority and practical influence. In...

Because the illness doesn't just increase the probability of being detained away from social contact. It's also medical contact, which it is entirely rational to avoid wherever possible due to General Practice ignorance infecting the overall treatment process or its assumptions. I know that...

It is wonderful :) The amazingly shocking thing is that it is NIH, i.e US, funded. And yet our 'under the influence' ministerial response to the last HoC debate refered to a lack of quality research applications. There is, of course, a difference between applying for MRC funding for a paper and...