Search results

  1. InfiniteRubix

    Closed New undergraduate research on the sociology of ME

    Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year student at the University of Aberdeen studying a joint honours degree in International Relations-Sociology. I am currently doing my Bachelor's...
  2. InfiniteRubix

    Gaslighting's evil twin siblings: Brandolini's Law of the Asymmetry of Bullshit and Gish Galloping

    Some of what we face as pwME has naming that I wasn't aware of.... Essentially they amount to the relative insurmountability of an overwhelming blitzkrieg of BS: Bullshit asymmetry principle (Brandolini's Law) "Bullshit" on @Wikipedia: https://en.m.wikipedia.org/wiki/Bullshit?wprov=sfta1 Gish...
  3. InfiniteRubix

    Chicago Health: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed

    Thanks for flagging. I've sent to him directly, at least for notification, even if he is not in a position to engage the threads directly.
  4. InfiniteRubix

    Chicago Health: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed

    Thank you. For some reason he doesn't come up in the editor when using @ @Leonard Jason - many thanks for all you do and have done. Not hollow words - I know many of us depend on your work or cite it directly in work released or yet to be. Re your new NIH funded work, there are a number of...
  5. InfiniteRubix

    Guideline from Danish Health Authorities on coding Functional Disorders (also about ME)

    Sorry my head is exploding. Am I right to interpret that this is all good progress, no? Have I missed something that undermines it all? (I don't want to demean the intricacies of proper coding...)
  6. InfiniteRubix

    DePaul: NIH funds Chicago-based study of chronic fatigue syndrome and mono in college age students

    The burden to caveat is substantial. Distinct words like predisposition, correlation and even comorbidity will too often end up being interpreted as causation. My memory of the behavioural research is that it's a common behavioural failing to mix these when interpreting, even in technically...
  7. InfiniteRubix

    DePaul: NIH funds Chicago-based study of chronic fatigue syndrome and mono in college age students

    Another important analogy. Autism spectrum disorder is is correlated with hypermobility, as I understand it (potential role of the gut). And being on the spectrum clearly has an implication psychologically, in terms of how one deals with the world and the additional cognitive load, let alone...
  8. InfiniteRubix

    Chicago Health: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed

    Thank you. I had seen and been concerned about that paper, and then totally forgot about it. I'll comment on that thread.
  9. InfiniteRubix

    DePaul: NIH funds Chicago-based study of chronic fatigue syndrome and mono in college age students

    There is a serious risk about blurring correlation vs causation when talking about predisposition. Random example. Hypermobility can lead to people requiring orthotics. Orthotics are not a predisposition or comorbidity of ME. Most would say it is the hypermobility. In fact, I would suggest the...
  10. InfiniteRubix

    Chicago Health: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed

    Agreed, and he's been on the record about that for a long time in many forms of media. I wasn't explicit enough, sorry. That second part about seriousness could be selectively understood, in fact I would suggest will be selectively misunderstood, as implying exactly the opposite idea that CBT...
  11. InfiniteRubix

    Chicago Health: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed

    When I say contradiction, I am meaning the implication that ME is not serious and that it is resolvable by CBT contradicts what I know about LJ and his work. Sure, the first part about "mental space" is fine for anyone, let alone the chronically ill. But that second point regarding seriousness...
  12. InfiniteRubix

    Chicago Health: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed

    That's a contradiction of his own work... Must be a miscontextualised quote, esp regarding the word 'serious'. Does he know about it? Is he on this forum BTW? Just one example of an LJ article: https://www.ncbi.nlm.nih.gov/pubmed/29430570 Differentiating Multiple Sclerosis from Myalgic...
  13. InfiniteRubix

    Prevalence and Treatment of Chronic Fatigue Syndrome/ME and Co-morbid Severe Health Anxiety, 2019, Daniels et al

    Agreed. Most of us chronically avoid the GP for years on end. They have made it rationale, albeit also increasing risks as a consequence.
Back
Top Bottom