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Sadly on Amazon and eBay fake car parts that look identical are sold as factory parts. The worrying thing is that there is not really any tighter restrictions for supplements for human consumption.

No no I was not criticising - I think the words you used were right. I feel exactly the same. Stuffed but happier today.

Bloody oath. That is an understatement.

Sort of like an Alfa Romeo….. a bit late but probably worth it.

I don’t get what was the point of the whole program. It was totally devoid of science and put people into a group of probably unrelated disorders. It had a whiff of Netflix Afflicted about it. The person who recovered from rheumatoid and ‘chronic fatigue’ through ‘holistic’ treatment and an...

I still cannot grasp Dr. Alastair Miller’s motivations in all of this. Puzzling.

I may have missed something but didn’t Fiona Symington state she had EDS, Fibromyalgia and Chronic Pain Syndrome. Paul Garner had a post infective fatigue state allegedly that stopped within 18 months? All a bit irrelevant to ME/CFS I think. Hopefully the reader would know that but still a...

Exactly.

A portable evaporative cooler fan with ice blocks in it may help. Maybe a Black and Decker on Amazon.

Being in Melbourne heat in summer can easily reach 40 degrees c for a couple of days in a row. For me/cfs this is pretty tortuous so the best thing I ever invested in was a split system air conditioner. It is so quiet my issues with sound are not a problem. If you don’t own the building this can...

I wonder if Andrew Lloyd, Vegard Wyller and Alistair Miller will be as outraged this time and write a letter to the BMJ protesting any medical intervention for ME/CFS are an affront to their business model.

So sorry Hutan. I have read all your stuff on DR Arroll and his lightening process work. Quite unbelievable that your GP sent this through to you. Hope you can find a new GP.

Good. Wish it worked for me. It is actually not allowed in Australia to be prescribed anymore unless under a ADHD diagnosis or being prescribed by a sleeping disorders specialist. Pretty ridiculous if it actually helps people.

Given that dexamphetamine, methylphenidate rarely work in ME/CFS and Modafinil is a useless drug for anything, I do not think this drug will work but maybe worth a go if it is a little different makeup being a possible NDRI.

That is the key point de-conditioning symptoms have nothing to do with ME/CFS at all. The picture is completely different.

Then put the evidence forward. If Alan Gordon said he had Me/cfs then that is a flat out lie. His description of it from a video I saw was of ‘back pain with fatigue’. I mean if that is having what most of us have on this forum call me/cfs then a solution will never be found.

That is patently untrue. Bad science gets shot down on this forum. If you think brain training in the format of Alan Gordon, Howard schubiner has any serious science to it then point me to the studies. They are acting like cult leaders that do great harm at present.

I came across Alan Gordon and saw he had recovered from M.E along with pain. Now it all makes sense.

Hi, maybe if you research Mirtazapine and speak with your Dr. It is commonly prescribed in Australia for Me/cfs sleep problems. It has some serotinergic blocking effects and antihistamine effects. Not sure if is available in Switzerland. It has to be used in low doses as in high doses it becomes...

This is so depressing the whole thing. Rheumatologists in Australia tend to not want to deal with me/cfs but in my experience 50% of them then gaslight you with Central Sentization ‘science’ cured by a mind-fullness course that they sell. It is totally obscene. At least I doubt this sort of...