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That sounds truely fascinating and frustrating at the same time. I think I had that drug for a short course and don’t remember anything good.

There was a Sodium Oxybate study for Me/Cfs that was supposed to get underway in USA a few years ago and it never came to be. I have heard of some Americans with ME/CFS being prescribed it off label and some have a better than normal outcome. Obviously there are issues with dependence if it was...

I doubt that very much. Lorimer Moseley’s main grouse is thinking of pain as a thing that can be controlled by the patient( he gives the example of alcoholism). He promotes ‘danger in me’ dim, Safety in me (sim) where the patient should reframe a bad feeling when confronted with movement or an...

That was my thought that Conti has missed the point a bit.

Response from Pio Conti https://www.qeios.com/read/724UCE

This is probably right. There is an alternative clinic run by a few GP’s in the most wealthy suburb in Melbourne that uses naturopathic/homeopathic remedies that they sell and also a pseudoscientific blood testing unit. The place is booked solid and based completely on fringe medicine. I know...

100% with you there. https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=370610

Hi,DHagen I was in a study for Multi vitamin, ALA, NAC, ACETYL L carnitine (without Malic Acid) in high does for Me/Cfs. It didn’t do anything positive, I probably deteriorated. It is a bit of a worry that they are recommending the MitoCore product. More widely, I don’t think there is any...

It is a scam dressed up as evidence based medical treatment. Most ‘intergrative doctors’ push the regulatory boundaries the same way.

A odd character is an understatement. The shocking 2002 Australian GP guidelines did enormous damage to ME/CFS patients down under which basically cast us aside from medical treatment. The 2006 Dubbo study was published and made a big impact but soon after he was referencing Peter White and...

A ‘Sleep Specialist’ was on morning tv in Australia recently talking about better sleep tips wearing a white coat... She sells mattress’s.

Interesting article on how ‘Central Sensitivity Syndromes’ evolved by Rheumatologists Milton Cohen and John Quintner from 2018. Seems this theory has fallen away somewhat in the last few years. ‘In 2007, Dr Mohammed Yunus from Illinois noted that a number of diverse, medically controversial...

Response from Caroline Struthers. https://www.qeios.com/read/9TAZ6R

I have severe ME/CFS and nothing else. My white blood cells count is always in the level BELOW the normal range and my Dr has a worried look when he looks at the screen. No one has really been able to say what this means if anything. Not sure if this would be immunocompromised.

New comment on paper from Brett A Lindbury. I think this a professor at ANU. https://www.qeios.com/read/U6CNJY

Hi Utsikt. You are correct but usually the people that recover have a far more contested diagnosis. Probably ongoing fatigue without post exertional malaise and sleep disturbance. Not saying it isn’t possible to recover with a barn door ME/CFS case but far less likely. A biomarker and some data...

Oh god. Will this stuff ever end.

I have been a bit critical of Emerge Australia over the years but their statement about the problems with the SBS Insight program was spot on.

I would sign up to that kind of research in a second if it was going on in Australia. Obviously that kind of therapy could do some harm but hopefully the Qeios article will start some deep conversations and get the ball rolling. Thanks.

I would describe it as an awareness of feeling in the muscles. A ‘lactic’ type feeling with a bit of pain but mainly a heavy-ness fatigue feeling. They have done muscle biopsies in Australia on us people but no lactic acid was found during a crash event.