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It is amazing this person has gained any traction at all. He is a dude that wears a lab coat and ‘consults’ in endocrinology. Fine if no damage was done but people that have a profile in the community and are recommending the protocol should know better. It was a bit of a heart sink moment when...

Quite a problem is Aust. regarding fires and arsonists. I think your analogy about certain BPS folks working in ‘symptom based disorders’ is pretty accurate.

I read the whole reddit page and found it pretty troubling. Great that Whitney is able to engage but some of the reasoning is a bit weird.

When they keep changing the name every 2-3 years they are completely stuffed. Medically unexplained symptoms, symptom based disorders, central sensitisation syndrome, FND ( I get some FND is real). Including IBS, POTS and migraine as the same disorder is silliness. A notorious physician started...

You are on the ball DHagen with you comments but I have been on this forum since the start and have not really got that view about experimenting with substances. There is just a lack of evidence and some Dr are pushing stuff at great cost. I think some of the substances you have mentioned in the...

There are not really good specialist or Gp’s that deal with the disorder primarily these days. They would be burned out after a year because they would be booked out solid for over a year. They used to exist and some of them were outstanding. These days if you are lucky you will be referred on...

Some of the ways people have been treated is truely appalling. I sort of wonder if I have had a lucky run with doctors or because I look like I am infective when at my worst and that I was always believed. Hopefully it is not because I am male. The biopsychosocial doctors that speak publicly in...

That is not my experience. It is worse when in PEM but otherwise the flu like feeling is always there for me since 1999. Only dead sleep is a break. Obviously.

Ok with antibiotics. Feel like death on CNS Stimulants. Onions and garlic make me feel real bad. First generation Antihistamines death again. And unbelievably - feel bad on Vegemite (Australian). A lot of drugs do make me feel worse where normal people don’t have that so maybe it is a disease...

I just felt twice as deplorable on those two substances where I could tolerate them normally before I had me/CFS. I go really pale on them which is really weird. One popular antihistamine/sedative injection for a migraine caused an anaphylactic reaction which is probably a seperate thing.

Very big problem for me in particular alcohol and antihistamines. I have thought about this a lot and cannot make much sense of it scientifically but I do think there is something there to be worked out. Not sure if a subset of patients is more prone or just a disease severity thing. I know...

Interested to hear about that. I wonder what percentage of people on S4me take something to achieve sleep at all. Managing sleep and medications when sleep cannot be attained naturally is very challenging.

Sadly it is quite common with brain training. It is a grift from some highly credentialed and mostly low/no credentialed people that goes all the way back to back pain with Sarno. I got caught up with one years ago but didn’t lose much. I don’t think many will be convinced by Garner and his...

That is so twisted and warped of PG to say that. I do not know where to start.

Howard Schubiner, Recovery Norway and others. A river of money running through these videos.

Wow about 2 grand a month! Is it not chemically related to Amitriptyline which is 8 bucks a box? I have not read up on the evidence base yet.

I had it in about 2010 and all it did was make me feel sick. It had no effect on any ME/CFS symptoms. It doesn’t really feel like a stimulant to me. It is a bit questionable what in the brain it actually does. When it was released it was supposed to act on histamine but I think that theory has...

I agree with that 100%.

I understand what you are saying but from my perspective they are pushing a pseudoscientific recovery program that the reader will pick up on. Maybe the current situation is worse than what is in my head particularly regarding the BMJ piece but for straight ME/CFS I feel it is more being...

Quite desperate as well.