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His actual name is David Blanchflower, and he seems like an influential labour economist. https://en.wikipedia.org/wiki/David_Blanchflower

Danny Blanchflower has more than 60.000 twitter followers, including some influential people. Some of them might get interested in what’s the fuss about. For some reason unknown to me, Blanchflower always retweets the message he is responding to. So his followers are also seeing some of our...

Is nobody publishing their feedback online (here on S4ME)? This could help spark the debate and inspire others to make comments as well.

Same here.

Adherence to what? GET and CBT?

This might be of interest: Suzy Chapman and Mary Dimmock have collated this reference list of neurological studies. It was used to argue that ME and CFS should remain listed as a neurological disease in the WHO classification...

I have responded with the following brief comment:

Valerie Eliot Smith has responded to my questions. Since this is all open access on her blog and the subject is meant to be debated within the ME community, I assume it is ok to repost her response here:

https://www.researchgate.net/profile/Jemel_Aguilar

I unfortunatedly know little about this, but there is another Belgian ME advocate who has been following up on this for the European ME Alliance (which includes Invest in ME Research IiMER). You can follow her on twitter:

Same here. It feels like I constantly have to put in effort, simply to keep up a sleeping rhythm that is close to normal. A bit like you have to keep running on a treadmill to stay at the same place.

I have posted the following response on Valerie Eliot Smith's blog, Changing the narrative #3: "Thanks for writing this blog. Creating a media steering group is an interesting idea. I do have some questions about it. 1) If the media steering group is constituted by a coalition of...

The ME community funds many researchers through organisations such as OMF or MERUK. Do not think that your situation is that different. You're not asking for money, but offering us your skill and expertise much like these other reseachers. I'm very grateful that people with your skill and...

I tried to, but it didn't work. When I push the button "Submit", nothing happens.

This article gives a good overview of how restricted our knowledge about central sensitisation actually is: https://f1000research.com/articles/7-1325/v1

Merged thread I saw this on the Facebook page of the International Alliance For ME (IAFME):

Thanks for posting this @Binkie4 The letter I've sent by mail and email regarding Chris Burton has not yet received a response except for the template that was given to everyone. So I guess involving your MP was a smart move that made a difference here. Thanks very much for doing this. The...

This is a Belgian study, so I had a quick look. Like their previous publication (https://www.s4me.info/threads/exercise-induce-hyperalgesia-complement-system-and-elastase-activation-in-me-cfs-a-secondary-analysis-2018-polli-et-al.6243/) this is a secondary aalysis, an additional analysis of a...

I posted the following comment on Valerie Eliot Smith' blog before reading this thread (the title suggests it's a discussion of the first blog post only). I see that my skepticism of some of her proposals are shared by others. "Interesting blog. Thanks for touching this difficult subject. Just...

Maybe in a country where TV-ads are cheaper and almost nothing is known about ME/CFS, like France, Germany or Italy this could be a good idea. I think however that it's a better (and cheaper) tactic to get the story of ME/CFS in the media by organising events like protest marches, running...