Search results

I appreciate ME Action coming up with a thoughtful media strategy, but I don't think this is the correct one. By creating a lot of online traffic, we show to editors that the ME issue is important and that articles about this subject are heavily dicussed and shared. I dont think this will give...

Very confusing article. Hard to know what we are actually looking at. It seems like a simple follow up of the Tummers et al. 2012 paper. By stepped care they mean patients first get the shortened self-help version of CBT and only if that doesn't work, do patients gut the full, face to face...

It seems that the whole methodology of Cochrane fails to give an accurate view of what actually happened in these trials. Anyone looking at the data (not the propaganda of the authors) of the GET-trials neutrally would come to the following conclusion: "there seemed to be an improvement on...

So in summary, it seems that Cochrane agreed with Robert Courtney on using the FINE trial unpublished data and the PACE trial selective reporting bias. But it's not clear if this will significantly alter the results. It seems mostly an illustration of Larun et al.'s bias in conducting this...

Michael Maes? No, I'm pretty sure he's from Belgium. He has written books in Dutch about CFS and depression and had a clinic in Antwerp. He wrote that he became frustrated with the Belgian universities, that he could not do the research he wanted, that he, as a pioneer in biomedical research...

Do we know anything about the date on this document and by whom it was written?

As is common, the Journal of Psychosomatic Research tried to contact him for a rebuttal of my short comment to his article. Thus far, (the published version will only appear in April) he has not taken up the offer.

Wonderful news, it made me SMILE. Thanks for your excellent work @JohnTheJack !

Thanks for looking at this @Trish .Had a quick look for other MUS-prevalence studies (it's hard to find them because they keep changing the name FSS, MUS, PPS etc.). Have only had the time (or rather the energy) to read the abstracts. It seems that most studies took place in primary care, where...

Up to ... figures can be misleading. All you need is one bad study to increase the number. Up to 70% of ME/CFS patients have POTS, but the real figure is probably somewhere around 25%. Up to 70% of ME/CFS patients have fibromyalgia, while the community study in Chicago gave a number of only...

Might be worth pointing out that the IOM report has been accepted by major health institutions such as the CDC (who changed their website information) and the NIH (who more than doubled their funding on ME/CFS) while the Cochrane review Fink cites has been called "substantially out of date and...

Great. Well done @Webdog !

I agree, but to me this isn't solely about credibility in the eyes of others. I think its possible that other forms of psychotherapy might actually help some ME patients, for example in dealing with a chronic debilitating illness that makes you lose friends, hobbies and everything else, or...

My question is a little out of topic, but I would be interested in hearing your take on this. What exactly makes ME/CFS a useful syndrome to research, but fibromyalgia not or less so? I think things could have gone differently, and CFS could have been defined by Reeves Bleijenberg and other...

I thought the previous note was more critical of Larun et al. (not approved publication of the re‐submission. The review is also substantially out of date and in need of updating) than this one. An amendment by the authors will not do, if the conclusions are still based on subjective outcomes...

Cook et al. (2003), the research team of Benjamin Natelson, even suggested that this indicates that HR may not be the most adequate physiological measure to prevent PEM. This was all a long time ago. Don't know why these findings weren't followed up on. Will be interesting to read what the...

There is a section about this on the MEpedia PEM page. It provides references and reads:

It's something that was noted in most of the regular (single day) exercise studies. I wondered what's it's about and why nobody was writing about it. One of the largest 1 day CPET studies for examples wrote:

Thanks @Gecko and @chicaguapa for organizing these events and sharing info. It's very useful information. Just one question: how do you collect that many (400 pairs!) shoes? Do you ask patients with ME/CFS to send them to you or do you collect them in another way?

Interesting: so by transplanting fecal matter from schizophrenia patients to mice, the mice showed changes in behavior and neurotransmitters in the brain?