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  1. ME/CFS Science Blog

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I'm a little bit more pessimistic than Andy and David. I was very disappointed that the New York Times and Medscape took over the Kelland article. I wouldn't focus too much on people discussing or commenting on the article. Most viewers only read the title or one extra sentence and will get the...
  2. ME/CFS Science Blog

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Somatic attributions, fear-avoidance, catastrophizing, hypervigilance, perfectionism, neuroticism, kinesiophobia and all that shizzle. At least that's what Chalder seems to think after all those years of experience.
  3. ME/CFS Science Blog

    Article: The rise and fall of the biopsychosocial model, 2009, Ghaemi

    There's also a book by Nassir Ghaemi: The Rise and Fall of the Biopsychosocial Model: Reconciling Art and Science in Psychiatry.
  4. ME/CFS Science Blog

    News from Scandinavia

    Do you mean that you used to think CFS was a wastebin diagnosis for things that doctors overlooked or can't explain, but that interaction on the forum conviced you that there may actually be a distinct pathological mechanism behind ME/CFS? Or am I misinterpreting things?
  5. ME/CFS Science Blog

    Central sensitisation: another label or useful diagnosis? (2019) Nijs et al.

    Does anyone have access to this paper? I'm quite interested in reading it, but can't seem to get a hold of it.
  6. ME/CFS Science Blog

    Internet-Based Cognitive Behavioral Therapy in Stepped Care for CFS: Randomized Noninferiority Trial, 2019, Knoop et al

    I wanted to say: hope that those who provide funds for this trial start asking themselves some questions, but I can't find any statement on financial support. In the appendix, a CONSORT EHEALTH checklist (V 1.6.1), one can read: "In the abstract it is stated that there was no specific funding...
  7. ME/CFS Science Blog

    Internet-Based Cognitive Behavioral Therapy in Stepped Care for CFS: Randomized Noninferiority Trial, 2019, Knoop et al

    Although the online versions with stepped care were not inferior, the trial seemed to have failed in several ways. The control condition consisted of regular, face to face CBT (in group format). Yet a third of the patients did not start this therapy, which may have influenced the results for...
  8. ME/CFS Science Blog

    Internet-Based Cognitive Behavioral Therapy in Stepped Care for CFS: Randomized Noninferiority Trial, 2019, Knoop et al

    Such a large number of patients (363!) and complex trial (a three-arm, parallel, randomized, noninferiority trial with stepped care) simply to determine if CBT is equally "effective" with 25% less therapist time. The PACE trial showed that CBT did not improve any objective outcomes (fitness...
  9. ME/CFS Science Blog

    ME debate in Danish Parliament March 12 (2019)

    Quote from the English translation:
  10. ME/CFS Science Blog

    Central sensitisation: another label or useful diagnosis? (2019) Nijs et al.

    Review on Central Sensitisation by the Belgian Research team of Nijs et al. Source: https://dtb.bmj.com/content/early/2019/03/11/dtb.2018.000035 Does anyone have access to the paper?
  11. ME/CFS Science Blog

    NIH Request For Information: Soliciting Input on How Best to Advance ME/CFS research

    Interesting. I suppose that if we are to submit an S4ME response, we should first discuss the main points we want to emphasize. For me personally, for example, that would be: 1) RFA's or other research funds dedicated specifically to ME/CFS to attract researchers into the field. 2) The use...
  12. ME/CFS Science Blog

    CORRESPONDENCE The PACE trial of treatments for chronic fatigue syndrome: a response to WILSHIRE et al (2019) Sharpe, Goldsmith & Chalder

    No Peter White... EDIT: the journal received the first manuscript in July 2018, so the bulk of this was probably written, almost a year ago. ANOTHER EDIT: This journal has Open Peer Review. So normally you can see what reviewers said about the manuscript. There isn't much information though on...
  13. ME/CFS Science Blog

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Great letter, @JaimeS ! Just one little remark though: I don't know if this is accurate: As far as I know, only the recent Australian survey by Emerge indicated such high percentages.
  14. ME/CFS Science Blog

    Diagnostic sensitivity of 2-day cardiopulmonary exercise testing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Nelson et al. 2019

    Interesting. So this is a new study on the 2-day exercise test procedure, although it is rather small (only 16 patients). The Australian authors found a significant reduction in workload (WR) at the ventilatory threshold (VT a proxy for the anaerobic threshold) on the second-day exercise test...
  15. ME/CFS Science Blog

    ME debate in Danish Parliament March 12 (2019)

    107 stemmer? Does this means it has broad support among the political parties?
  16. ME/CFS Science Blog

    News from Aotearoa/New Zealand and the Pacific Islands

    Perhaps we should start making a list to indicate the influence of that single review on healthcare policy all over the world? It would put pressure on Cochrane to stop stalling the update. Fink recently used it in Denmark. A government website in Belgium that informs doctors uses it to...
  17. ME/CFS Science Blog

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    Yes and 61% were women, so perhaps that's not the issue. But I was thinking that 38% is pretty low for these common symptoms (fatigue, headache, chest pain etc.). They only had to meet one, and yet the majority didn't. Perhaps the fact that it was a military hospital, could explain this. The...
  18. ME/CFS Science Blog

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    So 30 years ago Kroenke and colleagues went to an Internal Medicine Clinic for military personnel in Texas and they looked at the charts. They searched for 14 common symptoms that often remain unexplained such as fatigue, dizziness, cough, numbness, constipation etc. Of the 1,000 patient charts...
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