Search results

Just wanted to add a more optimistic interpretation of events: maybe the Cochrane editors have pretty much decided that the Larun et al. review must go. But in making this rather controversial decision, they wanted to give the impression that Larun et al. were given all possibilities to correct...

I find it hard to believe this causes PEM. Its a bit of a catch 22. Hard to say this but if you're looking for a test where patients do not suffer/deteriorate at all, then you're probably not studying PEM. That doesn't exclude that Moreau is studying something else that is interesting. I'm...

Maybe journalists called Cochrane, but were told that the decision is still in process and new information will be provided in due time etc. It feels like journalists are waiting for something...

Isn't it strange that no other major news outlet has reported about this (except Medscape taking over the Reuters article). It makes me wonder what's going on behind the scenes... Are they waiting for Cochrane to issue a press release or something? Hard to believe that the media doesn't see an...

I want to come back to the Reuters news article. On twitter Adam Lowe gave some interesting insight into the reporter Kate Kelland. Apparently she has a track record of industry-biased reporting (https://usrtk.org/our-investigations/acc_loves_katekelland/) In an article about her reporting on...

Weird publication. I think they allready reported those results back in 2010: https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.1365-2796.2009.02178.x Hard to see what's new about this.

I think this article is about the same study: https://digest.bps.org.uk/2018/08/13/interviews-with-100-cbt-therapists-reveal-43-per-cent-of-clients-experience-unwanted-side-effects-from-therapy/ “Psychotherapy is not harmless,” the researchers said. There was no evidence that any of the...

A good example of this the Tampa scale kinesiophobia for CFS. http://www.paininmotion.be/EN/sem-TSK-CFSEnglish.pdf It ask questions like: “If I were to try to overcome it, my symptoms would increase” or “my symptoms let me know when to stop exercising so that I do not harm myself”. Agreeing with...

Yeah, I ask myself the same question... In a poorly understood illness like FM or ME/CFS there seems to be no way of knowing if a patient is catastrophizing or that the disease is just much worse than the medical profession thinks. It is strange how little psychologists are concerned about this.

Canada Criteria (2011)? If they mean the ICC (2011), then they should make clear that this is a study into ME instead of CFS/ME (but maybe they just got the date wrong and they mean the CCC, (2003)). Also: I would have selected a subgroup of ME/CFS patients with a higher probability for the...

"Any headline that ends in a question mark can be answered by the word no." - Betteridge's law of headlines. I suspect this applies here as well.

Yeah, they give the impression throughout the study that their results also apply to ME/CFS, because results for this subgroup were similar. Only at the end is it noted that: "As relatively few individuals in the EBV infected group adhered to case definitions of CFS at 6 months follow-up, a...

To double check, I also e-mailed my questions about Pace to Daniel Lakens, university lecturer of applied cognitive psychology at Eindhoven University of Technology. Lakens calls the Pace-study dubious and meaningless. ‘It is a very bad study, which must be completely ignored.’ The Pace trial...

I’m not familiar with the history or the inner working of British patient organizations, so I will formulate my remarks carefully. According to my interpretation the wording used by Action for ME still leaves some forms of graded exercise therapy undisputed. The influential Cochrane review for...

True. It was just a suggestion. Felt like it would be wrong for me (as a Belgian) not to mention it.

I'm from Belgium and I noticed that Kenny De Meirleir and Michael Maes aren't on the list. Both of them have been quite outspoken in their criticism of GET/CBT and the research that supports it. For Maes there's a paper that he co-authered with Frank Twisk...

I wouldn't overestimate the human body. Phantom pain for example looks pretty misregulated to me.

Good point. But if pain is chronic and/or widespread (as it seems to be in some ME/CFS patients), changes are rather small that this represent an adaptive response of the body. Yet even if that's the case, this doesn't mean that ignoring pain is the best way to go. Especially since research in...

This is interesting, thanks for sharing. It looks like the CBT-hype is coming to a halt. https://www.theguardian.com/lifeandstyle/2015/jul/03/why-cbt-is-falling-out-of-favour-oliver-burkeman...

In 2013 Leonard Jason wrote a chapter on central sensitisation in ME/CFS in this book (P73-93): "Encephalitis, Encephalomyelitis and Encephalopathies: Symptoms, Causes, and Potential Complications (Neuroscience Research Progress) 1st Edition by Andrew Ruiz (Editor), Douglas Fleming (Editor)."...