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Yes, apparently they can be found here: https://www.nice.org.uk/guidance/cg53/history

I think this is quite an interesting study. A lot of studies report their findings in comparison to healthy controls (which is a bit silly IMHO), but here there's a clear differentiation between patients with ME (who's hand grip strength looks more like MS-patients) and patients with chronic...

Ah, so that's not a professional group?

Back in 2007, one of three lay members, Tanya Harrison, resigned from the committee. “I fear that when this guideline comes out, I, and hundreds of thousands of other patients, will be worse off", she wrote. Harrison felt that many problems stemmed from the scope of the guideline and the York...

I've recently been reading some of the early MUS-papers and it's very much Simon Wessely who has pushed this concept and term in the early 2000s (see studies below). Sharpe followed soon with some studies of his own (and he would soon get the help of Chris Burton). These MUS-studies seemed to...

I’ve also been skimming through the comments on the guideline draft from 2006. These comments were very extensive, hundreds of pages long in total (not fun to read)... What struck me at first glance was how strong the opposition was to this guideline. As far as I can tell all patient...

Been reading through some documents from the previous NICE guideline procedure (Dolphin posted most of them in this thread). They give some insight into the normal course of events and what we could expect to happen next at NICE. I think at the first stage the Guideline Development Group (GDG...

I agree and find it quite brave of you to do so.

So Weir and Shepherd are confirmed, while 3 positions are still to be filled...

Awesome, thanks again @Dolphin !

Thanks @Dolphin. Do you also have the document they are commenting on ? Might be interesting to see how it differs from the final nice guideline (2007).

Yes: the committee discusses evidence reviews and expert testimony and develops draft recommendations. But then there’s a consultation where stakeholders can comment on the draft guideline. The committee is expected to revise the guideline in response to those comments. I’m no good at...

They tried to minimalize the fact that the employment rate dropped by emphasizing that volunteer work increased.

Luckily for you guys, the results of this report were summarized in an English document by the Belgian Health care Knowledge centre (Federaal Kenniscentrum voor de gezondheidszorg KCE). it can be found here: https://kce.fgov.be/sites/default/files/atoms/files/d20081027358.pdf The chapter...

That's sort of what I meant: MUS is much more dangerous than a bad or non-diagnosis. MUS is for example far more dangerous than the DSM-V somatic symptom disorder. While the latter might give rise to many false diagnoses, MUS threatens (if it were taken serious) to annihilate everything about...

Thanks for your comments @Barry , but I think you might be underestimating what MUS is. You could best compare it to Finks bodily distress syndrome (BDS): a broad diagnostic category that would engulf all the knowledge we have of ME/CFS. A BPS’er can accept ME/CFS as a distinct clinical...

Did you also get the impression that a technical team wrote the first draft of the text? From reading the minutes it seemed like the committee members were just commenting and proposing adjustments to a text that was allready there...

On a related matter: It would be interesting to have inside information about the rules and processes of a NICE committee, because the documents do not explain everything. Does anyone have contacts with the lay members of the previous ME/CFS guideline - Tanya Harrison, Ute Elliot or Richard...

It's strange that NICE hasn't published a clear guideline or code of conduct about what committee members can do or say. Even their COI-rules aren't very clear.

Well, the fact that Dr. Shepherd chose to be a co-opted member suggests this is not a requirement for that position. So it seems possible that "to curtail or stop social media and media activity that involves contentious issues." is only a requirement for full members and not for other positions...