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I would like to participate but I suspect this is for US residents only. The announcement reads: I suppose that will be difficult, from outside the US.

I hope all ME/CFS-patients will fill in the survey to ensure Cochrane will have a stricter COI policy. This is really important.

My quick thoughts: 1) Tovey confirms that Cochrane planned to temporarily withdraw the Larun et al. GET review because the authors did not adequately respond to criticism in time. This was what the Reuters article was about. "A subsequent meeting with two of the authors” made the Cochrane...

A study from South Korea (Epub ahead of print): https://www.ncbi.nlm.nih.gov/pubmed/30605994

It's not really pain and stiffness sounds to benign. It's actualy very similar to a normal person going beyond his/her limits when exercising, for example a cyclist after a race, not being able to walk straight for a moment. Don't know the correct word for this in English, probably muscle...

This is great. Thank you @FMMM1 ! I'm afraid I know little about the European Commission and its ability to decide on medical research funding. Could you give us some basic info about this or a link that gives more insight into this. How much money do they control etc, examples of studies...

This is a horibble study. The authors didn’t use a control group so it could be that the changes in grey matter volume (GMV) were due to fluctuations in the disease process or the fact that patients were receiving treatment - that is attention and care from healthcare professionals – not CBT...

Many thanks to John. I have a technical problem however: can't seem to open the attached document. My adobe is nonetheless up to date. Am I the only one with this problem?

Yes, thats what I meant. Some use the biological evidence for the original, restricted meaning of central sensitization and act like it also applies to the expanded version, which is now dominant. Now I'm not against the hypothesis of central sensitization, the idea that changes in...

As I understand it central sensitization has been demonstrated, even in humans, but it referred to something very specific, namely a change in the excitability of the central nervous system that is autonomous of the peripheral input that triggered it. This was demonstated by experiments of...

Yes I would prefer that they admit that their paper was misleading in suggesting a causative role for sexual harassment in ME/CFS and that their data do not support such an interpretation. Now they seem to suggest that they've simply overstated things by using the wrong words…

The authors have issued a Corrigendum. It reads: Don't know if this is sufficient as the authors do not acknowledge that their message regarding childhood sexual harassment and ME/CFS is misleading. And frustratingly they still claim strong evidence for clinical effects of childhood trauma...

There's more info about central sensitization on MEpedia. See: https://me-pedia.org/wiki/Central_sensitization

I think this is the normal procedure in most ME/CFS studies. GP's refer patients they suspect to have ME/CFS to a specialist clinic. There they check if there are other causes that might explain the symptoms which is the case in many (around 40%) of such referrals. There has to be some...

I think the scale is focused too much on symptoms. When I assess another patient’s disability quickly, I focus more on his ability to work/study or take care of himself. For example: 1) Normal health. 2) Able to work: Is able to keep working/studying but this takes up all energy. Has to give...

Don't want to re-open the discussion about central sensitisation, but looking back at the essay, one thing that strikes me is how little we use the term "fear-avoidance model". We typically aim our criticism at CBT or the BPS-model even though these concepts mean so much more than the version...

The article was written months ago, in the summertime and has allready been posted (with references) and discussed on S4ME. See: https://www.s4me.info/threads/central-sensitization-a-matter-of-concern.5346/

I think the activity diaries should be seen as part of the intervention, so it's not that abnormal that there are differences between them IMHO.

Wow if that misunderstanding of the dubbo studies is true, that would be some really scary stupidity. The dubbo study showed that six months after having certain types of infections (EBV, Q fever etc.) around 10% met diagnostic criteria for CFS. NDIS apparently interpreted this falsely as only...

Yeah, how cynical that they chose to call their trial IMAGINE and make such statements in their main paper.