I can't remember where it was from but there was a GET study that showed no objective improvement using actigraphy, it was the trial that put the...
I've broken it down into 2 related Qs - the sub-types bit, then the 'claiming it' in research as a get out of jail free card vs 'where it is a...
...me if I know of any Dutch studies in ME/CFS similar to the Pace Trial, with methodological flaws etc. Any information you are able to provide...
Article in the Times today on Long Covid, specifically how to treat/recover from it predominantly based on one interview with a doctor from a LC...
What a terrible way to make decisions. I know I'm an outlier in finding clinical trials to be generally useless, unless they have obvious dramatic...
Reply: Doctors’ lives destroyed by Long Covid: There is an overlap between long covid and ME/CFS Alexis Gilbert consultant in health protection,...
..."science". (Apart from that, the notion that an author of the PACE trial who tells the health care providers of crashing, bedbound Long COVID...
If I'm following, it may be the complexity of CNS vs peripheral sites of action, ie which side of the blood-brain barrier the effects are...
...She also fails to grapple with the abysmal quality of the PACE trial and all the other research in this domain. Perhaps all that doesn't matter...
...then we are given a relatively large amount of detail about the PACE Trial which seems unnecessary in a Pacing resource. Success has many...
Yeah that's been one of the biggest factors why things are so messed up in evidence-based medicine. Sharpe actually replied once to someone...
...Comparison of treatments for chronic fatigue syndrome - the PACE trial Researchers in the UK assessed the effectiveness and safety of four...
...Andrew Lloyd’s BS. Does not even have the decency to read the Pace trial himself and look at the raw data. He has interviewed Sharpe, White...
https://www.s4me.info/threads/bps-attempts-at-psychologizing-long-covid.16013/page-63#post-495762
...about Long Covid and ME. The solution is GET, CBT and the PACE trial was just great. Bah! The doctor talking has been on a recent Long Covid...
...matter himself/herself and asked critical questions: didn't the PACE trial had null results for recovery/employment? Why doesn't the consortium...
...Opinions are not scientific. Perhaps they need reminding: The PACE trial was a methodological and ethical disaster. I think this one from...
...a bit to say - NICE guidelines: rating the outcomes of the PACE trial as being low to very low quality evidence; explicitly warning against the...
...may be that pacing has been very variably defined: in the large PACE trial, 3 which was negative, participants were asked to limit their...
Yes they seem to have a very specific way of looking at and seeing certain things vs others might on 'the framing'. And it is about time the field...
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