The incredible story of the PACE trial for ME/CFS | Part 1 How a phase 3 clinical trial went off the rails and led patients around the world to...
It looks like something has gone seriously awry with the reference citations. Todd has also spotted it. [MEDIA] I suspect he'll have more to...
[98] is Development of a fatigue scale (1993, Journal of Psychosomatic Research) I presume this is an error in the reference and they intended...
...'pacing and spoons theory' then mis-described them. Using the PACE trial formatting as if that is what pacing is. "Once I started to get...
And this is my (well, one of my) concerns with the Cochrane Exercise Review. The BPS proponents who seem to have some control over the outcome...
...reputations are in huge danger - we're now not only in the post-PACE trial world, but also at a point where post-viral biomedical research is...
Posted by @Grigor on Twitter, "OMFG! CBT/GET promoter Elise van de Putte. Author of the Dutch PACE-trial called FITNET admits that she harmed...
Post copied from News from The Netherlands Posted by @Grigor on Twitter, "OMFG! CBT/GET promoter Elise van de Putte. Author of the Dutch...
(Not a recommendation) How to treat long Covid — the experts on what really works https://archive.ph/qgNBQ#selection-1815.0-1815.58 For fatigue,...
Polyvagal theory may explain chronic fatigue syndrome and its treatment (paywalled). I can't access this either, but the listed references are...
...the Burnet Institute thought it was a good idea to invite Nathan Butler (of PACE Trial fame) along as an 'expert' on Long Covid treatments....
PACE yourself, LIFT is coming.
This idea about 'worrying' has been used before as a reason why GET/CBT 'might' not work. Tackling fears about exercise is important for ME...
Second highest on the list is the main PACE trial paper. The trouble with this sort of listing is it doesn't distinguish between research that is...
...sure that a red team would have prevented the problems with the PACE trial. It surely wouldn’t have included citizen scientists who were...
Week beginning 6th November 2023 Part 1 of 2 News and advocacy UK DecodeME - Last few days to join the research The questionnaire part of this...
From the Daily Mail article: Bald face liar. It is far more than a "group of people with chronic fatigue syndrome", as he damn well knows. Just...
I already see 2 papers published here. One about the Qure study and one CORPUS. There's also FITNET that even the PACE-trial authors themselves...
Wiborg, et al. 2010. They are indeed arguing backwards. Their claim is that because subjective self-report fatigue was not correlated to...
...2011 comment from Knoop and Bleijenberg that accompanied the PACE trial report in the Lancet. They were doing awful work before that and then...
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