yes DD i know that, of course they are happy to let people conflate the 2!.... except when it suits them not to. And in this case, when they were...
...ME with idiopathic chronic fatigue. Sharpe said in the intro of the PACE trial that some researchers think ME and CFS are separate illnesses.
Here's one of those surveys, published in the October 2002 edition of InterAction (issue 42), after the Medical Research Council asked for...
...members wanted research on pacing. When the content of the PACE Trial was questioned, that it was a study on CBT and GET, Chris Clarke said...
I am sure that is right. Tom seems to be the person who saw the scientific problems long before anyone else. My thought was that this may not have...
I think @Tom Kindlon was raising issues very early on about trial design in terms of use of subjective measures and commented on the protocol etc...
There is an issue in seeing how an organization works without seeing the individuals. As I understand it the former CEO (or perhaps someone with a...
...of the parts of the definition is often exclusions and in the PACE trial I was never clear how these were done - I seem to remember lots of...
The PACE trial claimed to be on chronic fatigue syndrome and their definition did not include PEM. That is scientifically legitimate. The term ME...
...earlier-finishing FINE trial. The protocols for the FINE and PACE trials had the same criterion for improvement on the SF36PF scale (having...
...report to the CMO published in January 2002. The first minuted PACE trial meeting was in June 2002, and those minutes reference earlier...
...to stress, nocebo and magnified "alarm systems"; praises the PACE trial; criticises ME organisations and advocates; and calls NICE ME/CFS...
So in a very general sense, I can see the point that ME is a "subset" of the condition of "chronic fatigue." And presumably, there are many...
...AfME had ideological bias, and despite designing part of the PACE trial, after the results were in, they distanced themselves. Apart from that...
This would presumably be at the stage of planning to set up a trial. The quotes are quite interesting in that they suggest that those with inside...
In the US in 2015, the CDC was still saying that PACE-style GET could help some patients. CDC dropped that in 2017 as a result of advocacy on all...
Maybe I'm misremembering, but I think that the 2007 guideline actually mentioned an upcoming trial that would prove it correct, likely referencing...
Also since FINE was mentioned, a timely reminder that this is the trial that (IIRC) had a primary objective outcome that was swapped for a...
Aside from the absurdity of arguing that criticism of the trial happened after they found out what was in the trial... And only loosely related,...
My guess is that it was about negative patient feedback on exercise and CBT, and possibly about physical vs psychological, but I haven't found the...
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