Welcome to the forum @jnmaciuch. Looks like you are going to fit right in. I hadn't seen this before, taken directly from the PACE Participant...
...That quote may be useful sometime e.g. when commenting on the PACE trial suggesting that activity monitoring was too onerous, or when...
Thanks for pointing that out. :) It's what they explicitly state and published in the main biggest GET papers is the basis for GET (and the...
Yep I think there are certain power bases including this that had been allowed to prosper under the old regime I’d be interested in a chart to...
Of course, there's not one single coherent story that is the 'BPS mechanism'. I expect there are some BPS people who have suggested that...
...Unfortunately, no text was available at that link. The Fine and Pace trials explicitly require deconditioning to cause the symptoms and...
Helpfully, the Pace trial spells out the central role of deconditioning in their theory of why GET works. It seems pretty clear that if...
A worthwhile topic to study, thanks, @ME/CFS Skeptic. I haven't read your article yet. Just a couple of points on your twitter thread. They...
...and light and noise sensitivity. This is curious because the PACE trial manuals convinced patients that such symptoms are due to...
...becoming permanently worse. The closest we come is actually the PACE trial. The GET arm had statistically significantly more severe adverse...
...rather familiar to eg the newsletter point brought up about the PACE trial protocol where people were being sent newsletters suggesting it was...
It's only going to get worse. This stuff has been going on for decades and has long passed the limits of what is reasonable. All that's left is...
Thanks Sid. I hope they publish my rapid response on line. Not sure if it'll get read by the authors but I'd hope they would be alerted to it and...
Great letter by Joan. Something very annoying is happening with the CODES trial. They took a different approach to PACE. They transparently...
...years ago when they wrote an article about the criticism of the PACE trial. Seems she wants to reach an international audience as it is in...
I would agree. That said one of my worries is that the dose tried is too high or inflexible for many participants. I know I am in the minority...
I have submitted the following rapid response to this paper this morning. It is limited to 600 words so not bale to make all pints i wanted....
oh poor them. :yawn: I guess the only potential thing - which I don't recommend anyone does - for the type who does that is to trawl back to the...
Week beginning 29th July 2024 News UK Inquest Warning: upsetting content The second week of a two week inquest into the death of Maeve Boothby...
Possibly why they had to do the PACE trial cos this one wasn’t sufficiently hard core
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