Citing that as the only reference for consumer resources / patient information is so dishonest and low. Not citing NICE is pretty revealing and...
...GET as “incremental physical activity, and they still cite the PACE trial manual as a guide for how to implement GET), but the bit that really...
Some days this all feels like a very long nightmare.
Thanks to @Three Chord Monty for noting that the RACGP guidance on ME/CFS has been updated: I've copied the guidance here in full, so we can...
I had the same impression, that there has been an uptick in the use of the term "rehabilitation" to refer to GET/CBT for ME/CFS, but it's always...
'Sleep hygiene' I suspect. It's what they taught in Bath back in 2011 and still teach today, including the activity management etc and...
I'm doing a 'going fishing' for it. But I've found the following paper (not sure if it is the one I actually read at the time or another one they...
I think this seems a reasonable issue to perhaps clarify and campaign for - whether the clinics themselves should be allowed to call themselves...
And to quote Michael Sharpe himself straigh after the new guideline was released he said that PACE and the treatment they oversaw in the clinics...
...continuing to deliver rehabilitation alongside other health interventions. " PACE trial is the fail. Thousands harmed by treatment is the...
They weakened the criterion for "recovery" on a global health questionnaire that was one of the four thresholds someone had to meet to be...
IIRC, the PACE authors ended up reframing it as something like the 'process of recovery'.
Thanks, I'd forgotten about that. I'm thinking of the more recent, much slippier language.
The descriptions in the PACE trial made it clear they considered the condition "reversible." Now I think they more often talk about "improvement"...
...here. " The research referred to in the debate became the PACE trial! We await the production by the Government of the Delivery plan (also...
The very severely affected case In the news is in Lancashire. BACME list 2 services for Lancashire - one is called CENTRAL LANCASHIRE MOVING WELL...
of course she is pro-GET Looks like she would need to change the name of her company from 'Vitality' otherwise her bio on: Our team — Vitality...
...as it is possible to be. Bavinton, Darbishire, White, 2004, PACE trial GET for CFS Manual for Therapists...
As per my post above, I'm not aware of a (large/large enough) rare variant study i.e. by Ron Davis or anyone else. NIH - we'll perhaps know what...
...have the MRC and NIH taken us for fools as well? Bit like the PACE trial largest study in the world on ME/CFS. Because even that's not...
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