Wessely....
Not sure I've seen the 2022 version before. From a quick look: (sigh) This is just a chain of buzzwords that might as well have been produced by...
I can think of one rule that would make a big difference: Apply the same standards to research of therapist delivered interventions (particularly...
Excellent reporting from RiffReporter as well as David Tuller's article. It's shocking but not surprising. At least it's evidence of the suspected...
...supporters including Peter White and Michael Sharpe, both PACE trial principal investigators, and both having long term financial conflicts of...
Anecdotes are evidence, it is just that they are inconclusive, at risk of bias like unblinded trials with subjective outcomes. Further the...
Yes, such as, 'Don't use subjective measures as primary outcomes in open-label trials'. That could have saved us a whole lot of trouble. :whistle:...
Yes a good idea. One thing we could do to move things forward, even if only a little, would be to utilise the factsheet project. When reading...
The people I imagine signing this would be doctors/researchers who don't work in the behavioural fields. @Jonathan Edwards said: So those are...
Week beginning 27th January 2025 News, advocacy and articles Sweden Patient advocate and forum member Mitt Eremitage has gathered information...
I think the massive campaign to preserve the Larun review may be in part about what is now necessary to obtain ethical approval for trials, and...
I was able to skim a little bit the part in this thread about directness/indirectness in PACE. I have often struggled to grasp why the fact that...
Thanks to a member, we can post some excerpts, focussing on things that may be news to members:
Gives some insight into Clinical effectiveness of an online supervised group physical and mental health rehabilitation programme for adults with...
Has somebody done a crosscomparison between CBT/GET and placebo in the Rituximab trials? My vague understanding is that those improvements...
...to some information on patient involvement in the design of the PACE Trial? I know Action for ME were involved (why them?) and were responsible...
Trial by Error by David Tuller: Norwegian Long Covid Rehab Trial Misrepresents Clinically Insignificant Findings As "Effective" Quote: This...
Edit: I haven't been able to read all the discussion. The PACE trial used the Oxford criteria for CFS, which only requires chronic disabling...
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