Search results for query: "Layla moran"

  1. M

    United Kingdom: National Health Service (NHS) news

    NHS boss says staff suspected of snooping on patients’ records should be suspended immediately Jim Mackey urges ‘zero tolerance approach’ in England amid growing concern over breaches of confidential data...
  2. R

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I’ve just remembered that I submitted a formal proposal for a Health Select committee inquiry (with some input from Margaret Mar) about 10 years ago when Sarah Wollaston was chair. She warned me in advance that they receive hundred of proposals and so the probability of success was low. In...
  3. T

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I think this would be worth doing. A parliamentary question gets it on the official record, and politicians and the public would see that Cochrane hasn't acted professionally, fairly or within its remit, without necessarily having to have knowledge of the specifics. Might also be worth asking...
  4. S4ME News

    News in Brief - October 2024

    Week beginning 28th October 2024 News, articles and advocacy UK #ThereForME have sent a letter, co-signed by 28 organisations and smaller initiatives, to Layla Moran MP (chair of the UK government Health and Social Care Select Committee). "The letter points to inadequacies, present and...
  5. rvallee

    United Kingdom: News from #There for ME

    Compensation for first responders suffering health problems from working on 9/11 took about 20 years. Can't remember when but it was only something like 3-4 years ago that it passed through the US congress. Similar with the burn pits and some other health issues from environmental hazards during...
  6. Ash

    United Kingdom: News from #There for ME

    Yes. I wasn’t suggesting not trying to change things. I am unsure if sufficient ground work has been done for this to land well. But the there for ME people do have tons of campaign experience and political connections so maybe that will make up for the disconnected disorganised state of or...
  7. NelliePledge

    United Kingdom: News from #There for ME

    There’s definitely a case to be made that with Layla Moran in the chair of that committee the chance of at least getting heard is much better than in the past. Taking it to a Select Committee is a step up from the backbench debates, if successful a step up in political pressure. true It can...
  8. Haveyoutriedyoga

    United Kingdom: News from #There for ME

    Thank you for the update Karen, and for the campaign! I will see if I can drum up some support in Oxford, my old stomping ground.
  9. K

    United Kingdom: News from #There for ME

    Hi all - just dropping in to say thanks to Science for ME for supporting the letter to the health and social care select committee! We were really happy to have you on board. If anyone here lives in the constituencies we've flagged, please do write to your MP on the committee if you can and let...
  10. R

    United Kingdom: News from #There for ME

    Good to see that S4ME is a signatory. Thanks to Karen and the team for organising this and coordinating this with so may organisations. With the support of the countess of Marr I submitted a proposal for a inquiry by the health select committee via my MP several years ago. I can’t remember the...
  11. B

    United Kingdom: News from #There for ME

    Thanks for posting this. I’ve a few things going round in my mind having read Chris Ponting’s useful posts that seem a direction forward as an ask and thinking about the issue of inquiries and getting the right and whether they can ‘put off’ emergency changes etc that might be needed for the...
  12. Fainbrog

    United Kingdom: News from #There for ME

    #ThereForME have posted a letter to Layla Moran MP (chair of the H&SC Select Committee) asking for an inquiry into treatment of ME and LC patients. https://www.thereforme.uk/p/thereforme-letter-to-the-health-and Sorry if this isn't the right post to share this on.
  13. B

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Thanks for posting. This seems a good development given she was involved in the parliamentary debates on ME/CFS too wasn't she? I've read the article and get a sense these are relatively important things but if anyone has more knowledge of the actual impact these things can make I'd be...
  14. SNT Gatchaman

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Layla Moran elected as Chair of Health and Social Care Committee Former maths and physics teacher :thumbup: Aware of impact of LC. BBC (2021): 'Staggering' number of long Covid cases, MP warns S4ME search for Layla Moran
  15. rvallee

    Long Covid in the media and social media 2022

    Sounds expensive and not very pragmatic. As self-inflicted wounds go, this is an expensive one. The NHS wasted billions on their wet paper tiger, and all it accomplished is waste billions more. Well, that and make millions of people suffer needlessly. And trillions in indirect losses. For...
  16. John Mac

    Long Covid in the media and social media 2022

    NHS lost a million working days to long Covid last year NHS trusts in England lost more than a million working days to long-Covid absences last year, analysis suggests. Thousands of doctors, nurses and other health professionals have been forced to take long periods off work because of the...
  17. S

    Long Covid in the media and social media 2022

    Two million people in UK living with long Covid, find studies Nicola Davis Science correspondent Wed 1 Jun 2022 16.19 BST https://www.theguardian.com/world/2022/jun/01/two-million-people-in-uk-living-with-long-covid-say-studies Includes comment from Dr David Strain, Layla Moran and Professor...
  18. Sly Saint

    UK: All Party Parliamentary Group on Coronavirus, March 2022 onwards

    Long Covid: Impact on the Workforce – in the House of Commons at 1:21 pm on 31st March 2022. debate full debate https://www.theyworkforyou.com/debates/?id=2022-03-31a.1038.1&s=Chronic+Fatigue+Syndrome#g1042.1
  19. Andy

    UK: All Party Parliamentary Group on Coronavirus, March 2022 onwards

    Press release: "MPs call on UK government to spend £100 million a year to research treatments for Long Covid Report finds UK government has ‘not adequately funded’ Long Covid research and treatments MPs and Peers say UK Government inaction means Long Covid will continue to impact UK...
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