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Thank you @Prairieplant :) The link doesn't work as it is a copy-and-paste of an insert in the main article, and I don't know what the full link is, but these are the articles on Aftenposten tagged as ME: https://www.aftenposten.no/tag/ME

Andy Burnham was Secretary of State for Health when the government decided to impose a ban on blood donations by people diagnosed with ME or CFS, intitially until patients had "fully recovered", but a lifetime ban came into force on 1st November 2010 for anyone who'd ever had a diagnosis and...

Mady Hornig has been a regular over the years of the IiME Research Conference and Colloquium and visited Norwich Research Park in October 2015 to speak alongside PhD student Fane Mensah (pictured beow with Ian Gibson) who works on the B-cell research at UCL with Jo Cambridge.

Yes and what I was really pleased to learn was how supportive JC has been to constituents with ME and related issues, including research and receiving informational material from IiME Research, so it feels like a solid show of support of something he's been genuinely interested in.

Hi @Jenny TipsforME I agree with you and this is the problem of the early reveal of the null result, albeit quite rightly done for all the right reasons, but it does mean that until a close analysis of the data is done and the teams meet to discuss, we await with more questions than answers.

The Phase III Rituximab News thread: https://www.s4me.info/index.php?threads/phase-iii-rituximab-trial-news.1153/

I've started a separate thread for 'A UK Rituximab Trial'? https://www.s4me.info/index.php?threads/a-uk-rituximab-trial.1228/

Following the news of the null result of the Norwegian Phase III trial, and interest in how this impacts the planned UK trial, I thought it might be useful to open a thread for this. The microsite for this UK rituximab trial and associated B-cell research is on Invest in ME Research Centre of...

£90 currently still up for grabs: https://www.justgiving.com/fundraising/nomenbar4me

Treatments are a goal of the gut research led by Simon Carding and Tom Wileman at Norwich Research Park (hub of the Invest in ME Research Centre of Excellence for ME). It wasn't on the agenda that I posted above but they've spoken publicly about the possibility of developing bacterial-based...

I think this is just because they haven't had a chance to fully analyse the results yet, or to discuss with Jo Cambridge, who's been working on B-cells since 2014 at UCL aiming to see if it's possible to be able to identify a subset of likely responders to rituximab, and I guess they're...

Rough English translation (courtesy of Anna Mitchell in IiME Research Facebook group) of this article in Aftenposten: https://www.aftenposten.no/norge/i/dd50mz/Nedslaende-forskningsresultat-for-ME-pasienter

Not an exhaustive list, but discussed at BRMEC7 this year... http://investinme.eu/BRMEC%20Colloquiums.shtml#brmec7

Sorry I haven't the brain power available just now to quote from the thread, but just to add my tuppence about PEM - you know how it is when you do a web search for one thing and happen across other interesting info? I was surprised to find info on rare diseases using the phrase 'exertion...

Also crowdfunded by patients and families, e.g. the Invest in ME Research Centre of Excellence programme underway since 2013 (patient samples taken from 2014) starting with investigation of gut microbiota led by Simon Carding and Tom Wileman and the research on B cells led by Jo Cambridge, all...

I'm amazed at the positive response to the card. I thought only about 30 people might see and sign it, but as people seem keen to share it more widely I've published a post today on the Let's Do It for ME blog with a little more background: http://ldifme.org/2017/11/23/thank-you-jeremy-corbyn/

Let's Do It for ME blog (I wrote this one so apologies if it's not good forum etiquette to share it here): http://ldifme.org/2017/11/23/thank-you-jeremy-corbyn/

Jen and Omar were at this year's Invest in ME Research Conference -

Thank you @Alis :thumbup:

Yes that's fine, I created it for anyone to sign as it's an international conference, but only as an easy way for people to express their thanks if they wished to, I honestly thought only about 30 people might want to sign it so I'm amazed at the response so far. Doing another glitch check now...