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Acupuncture has been available on the NHS for several years. I guess it may depend on area, but may be worth asking your GP about it if you haven't already? I also found gentle massage by a qualified physiotherapist very soothing of my neck, shoulder, upper back pain, in private sessions while...

Incidentally, just spotted this on Twitter too, but haven't read it yet...

It's the latest paper from the Quadram Institute (QI) Bioscience team at Norwich Research Park UK, hub of the Invest in ME Research Centre of Excellence for ME. They started their biomedical research programme (got underway Oct. 2013 with patient samples taken from 2014) with the gut because of...

On the subject of the gut @Kalliope, Andy has posted the link to a new review by UK-based ME/CFS researchers today on this thread: https://www.s4me.info/threads/review-article-does-the-microbiome-and-virome-contribute-to-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2018-newberry-et-al.2871/

Good grief what a load of baloney!

Kindy tweeted by OMF...

Your analogy reminds me of a comment on David Tuller's blog about the CMRC changes, @NelliePledge. pinklil wrote, "I think the CMRC changes are simply a case of rearranging the deckchairs on the Titantic." http://disq.us/p/1qq6hyr Seriously though, Stephen Holgate seems to have been quite...

Don't worry about the questions, it helps me get things clearer in my own mind (my cognitive function is poor), and yes, you're spot on, I don't object in theory, but I do think it a waste of time and money to test hypotheses of ME as a functional disorder.

Sorry @anniekim, my comment is garbled, what I'm trying to say is that I haven't looked into whether Neil Harrison had a preconceived idea that ME may be a functional disorder before he got involved in researching it via CMRC (maybe others have evidence of that) but then again, re-reading...

I'm honestly not sure if it's some of the biomedical researchers, like Neil Harrison, who are lured into the biopsychosocial trap, rather than that they don't have good intentions towards the patients whom they genuinely believe may or do have a functional disorder. This is my primary...

Yes, and I find it tedious that the stock response to concerns about CBT and GET as treatments for ME/CFS is that these are used for cancer and other chronic diseases so their use doesn't imply that ME/CFS isn't taken seriously or is psychological. That said, I have doubts about the claims for...

I feel the same. I first heard of Neil Harrison as a speaker at the IiME Research Conference in 2015, enjoyed his presentation on the conference DVD, was pleased to know of his interest and involvement in ME research and have no doubts about his sincerity and good intentions. I also don't...

As Stephen Holgate remains as CMRC Chair, it's still a possibility, will await that decision with interest. Stephen Holgate has been very supportive of Esther Crawley's research over at least ten years I believe, and for me, his comments on the CMRC changes that action is needed now etc., ring...

I haven't read the study, just saw this article and thought it was interesting in terms of subtypes in a disease and targeting treatments etc.: https://www.medicalnewstoday.com/articles/321097.php "Adults with diabetes could benefit from better treatment if the condition was categorized into...

This very thorough article by Lily Williams in the American Society for Biochemistry and Molecular Biology features many IiMER conference and colloquium presenters and attendees from over the years: http://www.asbmb.org/asbmbtoday/201803/Feature/ME/ Also, on International Women Day...

Not specific to ME or CFS, but sharing here as saw it tweeted by ME/CFS biomedical researcher Maureen Hanson. "Paige Wyant and Joy Brandys, along with the writer Jade Lennox, share the challenges of having a disease that isn’t obvious."...

Yes, I appreciate that. It's interesting as I've seen comments online from people saying they found it an easy read, couldn't put it down etc. I hadn't been able to read a book for years because of ME and read it twice, but still can't retain enough to quote from memory. On the plus side...

'A health scandal in our generation' is the subtitle to the book by former MP Ian Gibson and Elaine Sherriffs, published a year ago, 'Science, Politics, and ME....'

I think it's reasonable to have learned to read between the lines when it comes the to CMRC and their BPS colleagues generally. They have a long history of using words to very good effect and there is no evidence, as far as I can see, that this has changed, and between them they've been...