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I believe that Adam said 'treatment' in the singular and that the treatment for ME known to be of best of effect in the 1980s was rest? Simon Wessely understandably, albeit misguidedly in the case of ME, was concerned about this if memory serves me?

That's pretty much what I meant by saying "The ringfenced amount would be nowhere near sufficient for the task" but this was the first time the MRC had awarded any substantial funds for biomedical research into ME (@Graham has the figures on this I believe) and many patients saw this as a...

That's not the full story @Jonathan Edwards and is an example of what I said above about the role of patients and families. Stephen Holgate chaired the CFS/ME Expert Group, set up in 2008. Early 2011 the MRC announced ringfencing of £1.5m (later increased to £1.6m) in response to a short...

Didn't that project start after Neil Harrison became involved with CMRC though Simon? (He spoke at IiME Conference in 2015 so Jonathan must have met him through CMRC before then).

Shouldn't this say part-funded? How much funding has been contributed by MEA and other charities and funders?

The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015 (https://www.efna.net/emea/) This survey by EFNA includes M.E. https://www.surveymonkey.com/r/EFNA-YS It's open until 21st May and findings will be published on World...

I appreciate your contributions to the field and respect your opinions @Jonathan Edwards but my comment is based on realism and I will be only too delighted to find in the future that things have really changed for the better, however if it does, I know that's in good measure down to the hard...

Problem is @Jonathan Edwards that some of us have heard this all before, confidential hints at change and better things to come and so it goes on and on while children continue to suffer and people die before their time, whether by suicide or organ failure.

I don't think she will because biological research is essential to keeping patients and the paying public happy and to bolster the biopsychosocial movement and expand the category of functional disorders. MEGA was driven by Esther Crawley with Stephen Holgate and CMRC were describing it as...

I think it's lovely that Chris Ponting is a long time friend of yours @Simon M and hope that neither of you take personally any points I make about the CMRC. I was just so shocked to find out in 2010 what's been going on behind the scenes with these organisations and to see, by raising concerns...

You mean like Simon Wessely and Peter White did? ;)

If we consider EC as competent in such tasks as progressing the harmful biopsychosocial approach, spreading misinformation about a neurological disorder, succeeding in conducting unethical research and getting in published in journals, then let's hope the Peter Principle does apply.

March Update by IiME Research: http://www.investinme.org/IIMER-Newslet-1711-02.shtml

Just saw it posted by someone in IiME Research Facebook group and they replied.. "The establishment looks after its own as we have seen and no matter what crass, untruthful or hideously self-serving propaganda some people (and organisations) come out with they still continue to retain positions...

Tweeted by Patricia Hart, Directorate Manager of the Quadram Institute (hub of the Invest in ME Research Centre of Excellence for ME)... Seven countries now represented...

I tried acupuncture in one of the last ditch attempts to improve, partly as it was suggested to me in the NHS rheumatology department for trying to help relieve muscle pain, and partly because a trusted friend recommended an experienced practitioner; but I only managed two or three sessions...