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Lovely to see Katharine Seton included.. Katharine Seton's research blogs are here: http://www.investinme.org/ce-research-blogs.shtml

Hi @Rosie, my experience from online ME support groups is that foot pain is quite common in ME but that possible treatments or management may depend on the cause of the pain, e.g. nerve or muscle or inflammation. As for comorbity, something that affects the feet that I'd not heard of until...

How embarrassing that doctors need to be taught about the importance to health of diet and nutrition, however I hope this doesn't lead to a dumbing down of the subject and doctors making assumptions about patients and doling out one-size-fits-all advice. Quadram Institute at Norwich Research...

The UK charity sector is ripe for exploitation to promote government or business or private interests. I can understand revulsion at the news that Action for ME has joined the Science for ME forum and the point about their membership potentially legitimising their longstanding enabling of the...

I find Lisa's article quite poignant and note that she writes about evolving, and my sense is that is what will happen for as long as she is able to write and get published, so for now, a couple of years in to having ME, she finds hidden depths she didn't know she had by facing challenges she...

I like The Canary's reporting on ME-related issues, as the journalists go the extra mile by providing supplementary info and reporting in the broader context of chronic illness and disability, the biopsychosocial model etc. They're also willing to make and point out corrections of any mistakes...

Next step, remove the "barrier" to the BPS encroachment pre-school, even better, before birth. “Rather than start with the physicians, which might be quite a difficult task, we could make a start with youngster in schools. My experience is that they are much easier to educate. The only...

Those are good suggestions and I'm sure they'll update those notes when they have time. Yes, the BPS lobby is always ahead of the game, bearing in mind they've been playing it for 30 years or so, and NICE is using the argument that their treatment recommendations don't rely on the PACE trial...

Interesting, thanks for posting it @alicec.

I like the way the petition uses the hybrid term CBT/GET as the CBT protocol for ME/CFS incorporates the ideas behind GET, and as the petition is addressed to Mark Baker, this is a useful resource/reference, correspondence between Mark Baker and Invest in ME Research following the latter's...

From July 2017 with brief background, bullet points and references: http://www.investinme.org/Documents/Fact%20Sheets/Invest%20in%20ME%20Research%20-%20Flaws%20in%20BPS%20Theory%20for%20ME%20Fact%20Sheet.pdf

"Echoing the subtitle of the book Science, Politics .......and ME -a health scandal in our generation by Dr Ian Gibson and Elaine Sherriffs - Carol Monaghan described this trial as one of the biggest medical scandals of the 21st century." http://www.investinme.org/IIMER-Newslet-1802-02.shtml

Good luck @Inara. IiMER are also always happy to receive questions to put to the researchers at the colloquium and ways to contact them are here if you'd like to at any time: http://investinme.eu/index.shtml#ContactUs

I appreciate the clarity in the writing of the research article itself as it gives some great quotable quotes to give busy doctors etc. Thanks and congratulations all round.

That photo is disturbing. He's been on to the young Royals for a while hasn't he.

Hi Inara, the science is beyond me and I can't open all the links, so just wondered if you have contacted the Tronstad Lab, as Professor Karl Tronstad was involved with the 2016 paper by Fluge (https://insight.jci.org/articles/view/89376) and I believe his team got further funding from the...

Congratulations to all the activists involved in achieving a much better outcome from this "mission impossible" than would otherwise undoubtedly have been the case imo, and for raising wider awareness of the insidious biopsychosocial movement at the same time.

Another rejectee was a Principle Fellow of the MRC, another reason why people doubt that the applications were of such poor quality. Quoting from the Gibson Report: Biomedical applications in respect of CFS/ME known to have been rejected include those by Professor Jill Belch (herself a...

Thanks for clarifying Russell, and Andy for the link..

Thank you @Graham.