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Hi @Jenny TipsforME yes I agree with your good point about the delayed response in the Phase II trial, Invest in ME Research commented on Facebook - That Facebook post links to their statement: http://www.investinme.org/IIMER-Newslet-1711-03.shtml - extract below -

Spotted on Twitter with link to pdf: http://www.investinme.org/Docs/NMEF%2030%20Years%20Letter.pdf

There's a glitch on the group card site whereby duplications of some signatures are generated automatically and it's easy to check by means of the list of names on the home page of the card. If I can't edit out the duplicates or if it goes crazy I'll contact the company for help to sort it. I...

Good idea Sasha :thumbup: Simon Carding said to the BBC Look East TV journalists in January 2017 (will listen again to get the actual quote) something like "None of this would be possible without the patients". The report is on youtube in two parts as the late evening news edition included a...

Yes, Adrian posted it here - https://www.s4me.info/index.php?threads/iime-november-money-match.593/

Thanks @NelliePledge yes they are great, ideal for short messages, and that was one of their own designs, I just uploaded the photo of JC (from his Twitter profile pic). It can be printed off too if wished. :)

I'd emailed IiME the link for their info, posted it in their Facebook group and I see a few people have tagged them and JC with the link on Twitter with the usual hastags so hopefully all covered for now. :)

He has accepted the invitation to be there to speak in person, subject to unavoidable or external events such as a general election, political events, etc., so that would be a good plan if he could pre-record a speech just in case.

£323.00 raised so far (I'd been sharing Jon Campling's birthday fundraiser as it's for the same charity). https://www.justgiving.com/fundraising/nomenbar4me

Thanks @Sasha :thumbup:and also @Andy for inspiring the idea :thumbup:and @NelliePledge for spotting the update by IiME Research on social media :thumbup: https://www.s4me.info/index.php?threads/iime-conference-2018-starting-to-fill-in-agenda-j-corbyn-to-be-confirmed.1108/

Excelllent, thank you @Sasha :thumbup:

Interestingly, the petition was created by Sharon Anne Tiday, mother of 10 year old Shannon Tiday, whose instant response on video to the media hype about Esther Crawley's SMILE trial of the Lightning Process was itself reported in local/regional media. So although I completely agree with your...

@Andy your comment gave me the idea of creating an online thank you card (I think you've signed it). http://www.groupcard.com/c/vRZACP3vJAn

I reckon the child with ME will be the coolest kid in the class. :cool: While waiting for the biomedical research to hopefully lead to treatments, to filter through to paediatric care, many patients become adults who've missed years of experiences of childhood and adolescence, so I welcome this...

EDM 212 was specifically in support of the UK CFS/ME Research Collaborative and carefully worded, e.g. think MEGA. Also bearing in mind that IiME Research had been doing just this since 2006 and is why I'm sure CMRC formed as the next incarnation of the MRC Expert Group in collaboration with the...

It's one of the links to EDMs that @MeSci found. I'm sure you're right that he wasn't aware of the background to the CMRC. Here's another one he signed in 2010: http://www.parliament.uk/edm/2010-12/778 (edited as I posted the wrong link first time). Apparently, Jeremy Corbyn has been very...

Nope, first I'd heard of it too, by seeing it just now social media. :) Agree, and it does say, (TO BE CONFIRMED) so I guess it's a case of watch this space! I gather one VIP has confimed tho' ;)....

Thanks Esther, Jon celebrated his mam's 80th birthday in March by doing the same. He also takes his charity collection box to various Comic Con and other events throughout the year, he creates short videos for awareness, and he wrote the Foreword to the book by former MP Ian Gibson and Elaine...

Yes that's Stacy Hart aka musician Mama Chill (mainly rap, hiphop) aka writer at Runnin On Empty.