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  1. TiredSam

    Well-known, famous people with Covid-19 and Long Covid

    Type A personality innit.
  2. TiredSam

    UK: Collecting evidence on problematic UK approaches to ME/CFS and Long Covid

    An article on this subject from the Law Society Gazette...
  3. TiredSam

    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    Why is the phrase "exercise-based treatments" linked to the word "progress" in this sentence? The implication in "unless the person feels ready to progress" is that it is normal for PWME not to exercise and not to want to progress. How can they even use the phrase "exercise-based treatments" -...
  4. TiredSam

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Not quite sure why the deliberate / fuck up distinction matters much. Whichever it is, they are in the way. They are not helping. They are perpetuating harm. Even if they are just incompetently fucking up over and over again whilst clinging to their delusional ideology, they are not open to...
  5. TiredSam

    SARS-CoV-2 infection increases long-term multiple sclerosis disease activity and all-cause mortality in an underserved inner-city population, 2024

    Well I've just noticed that I spelt "undeserving" wrong in my post, which will teach me to go correcting other people :)
  6. TiredSam

    SARS-CoV-2 infection increases long-term multiple sclerosis disease activity and all-cause mortality in an underserved inner-city population, 2024

    Typo in the heading surely? "under deserved" should be "under served"? Perhaps someone got confused with "underserving"? Not Freud's biggest fan, but there's an interesting slip, if it was one.
  7. TiredSam

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Or based on how to give presentations. Lecture notes, a page of 9 bullet points, beamed up to the audience? Sorry, but I spent 9 years teaching and examining presentation skills, and that's a fail. Can't these people be bothered to learn how to do anything properly?
  8. TiredSam

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Very disappointed to discover that Tim Harford has given psychogenic blah blah a free pass and Robert E. Bartholomew's book an uncritical recommendation. Listening to Tim Harford explaining psychogenic illness it could be Wessely or Sharpe talking...
  9. TiredSam

    Opinion: Treading Fine Lines by Harriet Carroll [on ME/CFS/LongCovid patient/researcher relationships]

    Dammit. I wrote the above after reading the first half of part 1. I have been completely hornswaggled.
  10. TiredSam

    Opinion: Treading Fine Lines by Harriet Carroll [on ME/CFS/LongCovid patient/researcher relationships]

    That was a very interesting read. I've always drunk a lot of water, not because I'm thirsty, but because it's supposed to be good for you. This might explain why something salty makes me feel so much better - I've been diluting the sodium in my blood too much? I shall experiment.
  11. TiredSam

    Opinion: Treading Fine Lines by Harriet Carroll [on ME/CFS/LongCovid patient/researcher relationships]

    I missed the first quote mark too and was surprised and impressed by "both a scientist and a patient", wondering how @Andy had modestly kept his career as a scientist under his hat for so long.
  12. TiredSam

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    In the interests of diplomacy and collaboration I will make a herculean effort to restrain myself from saying "Don't be silly", hopefully thereby setting a splendid example to others of the kind of language that is appropriate on a forum of very ill people using their precious time and energy to...
  13. TiredSam

    UK: Open Letter: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.)

    Be careful what you wish for. Demanding anything of health services for ME has gone horribly wrong so often.
  14. TiredSam

    Blood–brain barrier disruption and sustained systemic inflammation in individuals with long COVID-associated cognitive impairment, 2024, Greene et al

    Sky news: https://news.sky.com/story/cause-of-long-covid-brain-fog-could-be-from-leaky-blood-vessels-study-says-13078199
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