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  1. erin

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    I pick up after 12 p.m. until 4 - 5 p.m.. I'm tired after this, I have a small peak after dinner though on good days. This usually lasts couple of hours.
  2. erin

    What is the course of your ME/CFS?

    I struggled to choose between the 2nd and the 4th. But I'm an optimist I thought the second options is maybe more appropriate in my case.
  3. erin

    Unrest available worldwide today on Vimeo and iTunes

    I felt the film would have an impact on ordinary, average people about ME. It is slightly glamorous; both Jen and Omar very good looking, highly educated and intelligent people who are very much in love. They are the not average, Jen could definitely be a hugely successful at her job but she's...
  4. erin

    Gluten-sensitive? It may actually be a carb making you ill

    I eat plenty carbs but no gluten. Most of my gut issues got better since I stopped gluten. I've read an article about remnants of glyphosate causing the issues with wheat not the gluten. I'm fed up and confused. I'm simply off gluten, whenever I eat (very rarely) I seem to get sick. Too risky...
  5. erin

    Very sore and swollen ankle?

    Jonathan, side to side definitely hurts. Not too much though. It also makes a clicking sound when I flex my ankle. Its the right outside of the right ankle is swollen. In general I feel that ankle is heavy and there is a very slight constant dull pain there. Thank you.
  6. erin

    Very sore and swollen ankle?

    I have seen an orthopedist in early September. I had flank pain (left), had lots of blood tests to eradicate certain diseases. All the results were normal. He said flank pain was due to inflammation of the soft tissue. He checked the ankle and it was swollen that day, he didn't say much about...
  7. erin

    Very sore and swollen ankle?

    This was an on/off symptom for more than a year. I feel my right ankle more and more causing grief to me. I actually feel so uncomfortable recently. It is now, including mornings, permanently sore and swollen. It feels as if something is stuck inside. I used Vicks vaporub at some point and it...
  8. erin

    Anyone get root canal (either before or after ME onset)?

    After having ME, I gradually started to have pain in my jaw and my teeth in general. This made minor dental work very painful too. Its like any pain is magnified in the mouth area. I was in tears on waking up every morning with jaw pain. It gradually disappeared over the years. While I had...
  9. erin

    Keeping Up Appearances - How to look good while feeling ill

    I'm in my pj's most of the time, or track suit kind of casual items I wear. And fleece, always fleece :yuck::sick:
  10. erin

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    @Ysabelle-S, I don't have shaky jerky movements normally. But, I had sudden crushes, and 3-4 times I had my left hand in seizure like shakiness. In all of them I was in A&E after severe vertigo attacks and was put on a drip with mixed vit-B in it. One of these episodes I had a lot of shakiness...
  11. erin

    Do you have throat problems?

    I seemed to have on and off cough since the pneumonia I had in April. Especially early hours of the mornings recently as the weather is getting chillier and wetter.
  12. erin

    Burning ankle?

    This is a reasonably new symptom of mine; my right ankle is sore. It is not a constant pain like soreness, more like it is burning. Anyone else is experiencing anything like this? I'm positive that I did not sprain or hurt it in some way. It is usually worse first thing in the morning, it...
  13. erin

    Has a gluten free diet helped your symptoms in any way?

    I've been gluten free diet on and off in the past but now I've been eating gluten free for 9 moths. My GI symptoms are much better. I had a Coeliac biopsy and it was negative. The gastro specialist told me to go back to gluten and I did for a week 3 months ago. It was a disaster. I was very...
  14. erin

    Jen Brea talking about Unrest on GMT BBC World News

    I thought she's looking tired. Her eyes are tired looking.
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