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That was an email sent to people on a mailing list. Is that hype? They say themselves it's too early to say more. It's just an update for interested people, and I'm thankful for getting this info.

I don't know PCS and if emotional symptoms are actually part of it, I just know that during the acute phase of concussion you simply have no resources for emotions or whatever; but to be fair that was just my experience. I was really knocked out, the first time unconscious for one or two days...

I had two concussions, one moderate-severe as a child and one mild-moderate when I already had ME (it accelerated the disease profoundly; but of course the concussion was tension headache, according to one doctor to whom I went then :rolleyes: I didn't rest enough - which was a HUGE error in...

I beg your pardon? Is this right? They looked at post concussion problems without knowing (or even asking) if people had a concussion prior to symptoms? Can this be correct? I think I don't get the sense of the study... After re-reading "objectives" I am not sure if the study makes sense...

I will not participate in this survey because @Action for M.E. has shown to twist results and thus harm pwME. I simply don't trust them. This made me angry: Sure, a "specialist" will be the salvation. Or a psychotherapist. Or a priest. Those dumb peasants! Given the existence of great...

I think there will be no contradiction. "Functional" means in those settings psychosomatic. In Germany, at least, they're "honest" about it.

Why could be? If the first name is different, it's not the same person?

The art is, though, to get a patent without explaining in detail how to do it. ;) A patent is not a step-by-step how-to, it needs to be understood by an "expert" of the field; what that is is quite interpretable. After all, the office will grant a patent and you have to enforce it before court...

Well, again it's only the mothers that intensify a child's symptons. But, yes, Vogt wrote "mothers/parents", that strictly includes the fathers, somewhere...maybe...

It feels like they dont want ME to be a real disease.

This from someone who may be called THE reason why in Germany (and elswhere), politicians, doctors and everyone else believes and propagates ME/CFS does not exist.

I've seen the analysis they're doing and it strongly suggests they haven't read the papers (shit, that sounds like Sharpe :cautious:) and that they don't know how to interpret the results ME-wise. People need to go with the papers, everything else is useless. I don't understand this really. The...

Thank you so much @Trish, I remembered there was something, but I couldn't find it. I totally agree @hinterland. That's why I want to clarify this beforehand. I want to be sure the analysis is made according to publications.

Ok, this is not UK related, but I thought it might be a right place nonetheless. Are there papers - or the like - that give information about how to do a 2-day-cpet? I will do one in August, and now I've heard their analysis is a disaster. Maybe I can prevent a bad analysis by bringing...

I am not sure. We already know the PACErs think WHO is a bunch of idiots who just don't see the truth, and we know that they don't give a damn about ICD.

:laugh: But Sir Hugh Swynford wasn't very popular, so dishonoring him wouldn't have been a problem. :D (And he only was a low knight.) History seems to agree he was poisened. Speculation is about why he was poisened, and one probable reason might be to free his wife for the duke who was in...

Ah, this may even go further into the past. Sir Hugh Swynford, husband of Katherine Swynford who later married John of Gaunt, Duke of Lancaster (whose children were the Tudor ancestors), suffered from dysentery, and it seems in the following years he had several more "attacks" that might be...

As I understood the results were promising; indeed, I was told some were much better even 1 year after immunoadsorption (plus IGG). But they restricted their study to participants that showed autoimmunity, and they told me if there are no autoimmune hints it's not indicated and won't, most...

Only 16 donors from Germany. This saddens me so deeply. :( At the same time, thanks to these donors!

I think this could be powerful.