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I have taken the position of waiting to be asked. That has worked most times, just not for the delivery plan consultation (beyond RWG stage).

I was thinking more of lunch at Trinity High Table. I find it a good place to talk! I was also wondering about consulting a colleague about the tingling and numbness in my hands and feet. I think there are all sorts of avenues. We might even get Matt Brown the Ank Spond geneticist interested...

Anyone can have a good but I am thinking chiefly of the high level expertise we have here for making sense of the gobbledygook of genetics results, noting pitfalls and putting things in a tight perspective.

We are aware.

As I have said before, commenting on what not to do and actually fuelling a constructive process that will get useful progress are two very different things. My view is that where S4ME can contribute is in terms of spreading the word about the science coming out and getting one or two high...

The interesting thing is that this judge has been beset by very serious problems over many years under a particular specialty and when I argued the case above she said 'Yes, I see what you mean, if ever I have a problem I go straight to (X specialist hospital) and the care there is fantastic...

Antibodies to peptides are pretty meaningless. They seem to have found antibodies that bind to peptides from a range of proteins that share some sequence similarity to microbial proteins, which is almost certainly completely irrelevant. Peptides with similar sequences exist everywhere in...

Yes, that puts what I meant clearly.

I had this argument put to me by a Dame who is a high court judge a week or so ago. It is entirely bogus!! Who says hospitals deliver for hospitals? What does that mean. They try their bet to sort out people's problems as far as I know. That seems like an anti-hospital fetish - which I have...

To identify what the problem actually is if it cannot be conveyed by video. Specialist nurses can be very good at this too, but have more limited training. And if consultants never see problems face to face they will never learn.

I have not really thought through what 'neighbourhood' is going to mean. An interesting question. They probably do not know themselves beyond a nice friendly term. But it may well be based on the idea that we don't need doctors much at all. A pharmacist who can tell you how to open the box of...

Edit: I wrote this having misread you as saying that you disagree! But the arguments are the probably the same!!!! But that isn't an ME/CFS service, it is just providing a domiciliary general medical service. In the 1980s I did that personally from my hospital base, going out and taking blood...

I think it is very unlikely that you can sense saline. Your blood plasma contains exactly the same saline as its main vehicle (maybe 90%). It is just possible that you can sense the dilution of other things but I have doubts since it will all be mixed up before it reaches your chemosensitive...

And the doctors will switch off long before they get to the bit that matters. Or worse, buy in to the embodied mind and send the patients to the embodiedmindist = psychotherapist.

Home care can be delivered by domiciliary outreach from hospital units or by district nurses who have had detailed instructions from specialist practitioners from the unit. To me 'local level' is a myth. It is just as easy to get to and from a hospital as a GP in most parts of the country...

Most of the ME doctors are way past retirement age. And so are a lot of their original patient followers. We just need to move on from there without getting caught up in blood clots and other such stuff from new enthusiasts.

But PEM isn't about weakness or lack of available ATP. It is about feeling terrible, as I understand it. From all the physiological studies I am not aware of any evidence for muscles not being able to generate force after a previous bout of exertion. Maybe there is, but it still isn't PEM as I...

Are we referring to the same article. The few hundred words I read were all complete woo.

I find that weird. There for ME put out material specifically endorsing the community aspect of the plan - which is really the crux of the matter. Maybe in toto it is more a rubber-stamping by default but it has the effect. It is a bit like saying of a new $80billion nuclear submarine that sank...

I was invited to join Forward ME around the time of the NICE committee. I said thank you but no. My reason was not that opinions appeared to be fragmented, making consensus impossible. It was the opposite, that everyone was boxed in to the same unhelpful model of the situation. Moreover, members...