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Yes, I’ve had at least 2 different ones. The latest showed I had bradycardia and this is what brought me to the last cardiologist I saw a few weeks ago and who said he is not worried. Great tips, I will use that in public for sure. Although I’ve had to ask if I could sit in some stores, for...

I’ve left them about 10 seconds in the air and only felt a little tingling in the hands and fatigue in the arms and I was a little out of breath when I sat down.

Thank you, I’ll make a note of that for my doctor.

No, don’t delete it. You have freedom of speech, my friend. It’s not depressing. I’m not going to die. Not yet. My heart won’t stop soon, I’ve had bradycardia all my life. I might faint, but hopefully my dogs find me and lick me until I awaken...

What ??? Is it me or this makes no sense at all, lol ?

I have never tried. I am not going to try it now, but tomorrow when I have to adjust the setting of the air conditioning, I will and I’ll let you know. ETA : I tried it. It brought on some level of dizziness, but nothing like lifting my head and looking up does. It could have been from...

I had the long table tilt test done by a dysautonomia specialist 2 years ago. It showed Neurally mediated hypotension, but no POTS. I don’t know if this can evolve with the illness ?

No I’m not. I do not really adhere to the hypothesis of CCI as an ME cause so haven’t looked at that at all. Maybe I should work on opening my horizons, lol !

Thank you ! Do you have any tips on how not to get hurt when fainting ? How do you manage that ?

I have tested positive for neurally mediated hypotension. Dizziness is one of my main symptoms. But there seems to be something different happening. Or maybe it’s just worsening of my existing symptoms ? I’ve had ME for about 5 years and although I’ve often had to lie down in order to avoid...

Were you on three antibiotics simultaneously and how long were you treated for ?

Well, I was surprised too by that statement. He says he’s seen all kind of different ways the illness appears. I did not think it could reactivate decades later. Still very unsure about that.

Thank you for sharing !

I like that idea a lot, I might ask him about it ! Do you know what is meant by « short course » ? Is it 2 weeks, 4 weeks ?

I just wanted to point out that he won’t be making a lot of money off of me. His motivation cannot be money in this case. Also I am not looking for medical advice, I know it is against the rules. I’m looking for personal opinions on the matter and asking « what would you do if you were me »...

Thank you for your input. Do you care to share why ?

I don’t think I care what people say. I don’t really believe 100% I have Lyme disease. I am sceptical, which is why I am asking for opinions. I don’t know what « QoL » is. Quality of life ? I haven’t started the treatment yet, as I don’t know if I am going to go ahead with it. I know many...

i know there is a lot of controversy over chronic Lyme treatment, but let’s do this with respect. I am not saying chronic lyme is a real thing. I am not saying it’s not. I’m neutral. I have seen a new doctor recently, thinking he would treat me for ME/CFS with a new approach. Instead, he...

Ouiiiii, c’est ça ! :-)

The way we make shepard’s pie around here is very simple : ground beef at the bottom, 1 can of corn + 1 can of cream-style corn in the middle and 1 row of mashed potatoes on top. Put that in the oven for 30-45 minutes and you’re done ! I buy it (homemade) at the grocery store. I almost never...