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    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    sorry, stupid moment! So they haven't written it up as an actual paper, it is just a summary in with some others. Interestingly at the end it says "Treatment is uniquely based on a patient inspired intervention." If you had these amazing results from "the largest study ever conducted" in this...
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    Melatonin

    I get it from a website in the US and also if I ever go over there. I get terrible zombie hangover on normal sleeping pills including antihistamines. The melatonin can sometimes have a slight hangover for me at the higher doses but a couple of coffees gets rid of it, whereas they dont shift the...
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    Melatonin

    the slow release ones do keep you asleep through the night - i use them for jet lag and they work wonders
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    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    and that it is an NHS service makes it even worse. If it was a private clinic then it's evil but not as worrying. But being nhs takes it to the next level - Disney villain scale of evil
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    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    I've heard bad things from others about the Oxfordshire NHS ME service. I wanted to find out who the GP is that runs the clinic, if you know anyone that went there could you ask?
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    Melatonin

    I love that it gets me to sleep on those wired but tired nights. Having had a full night I do feel better (not quite as zombie like) but havent noticed any other benefits but not sure what thise would be. I take .3mg if I am using it every day. Or 1mg if I need to make sure I get off.
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    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    bit too cold for that at the mo - so maybe it only works in the summer. Or maybe being chased by the pony helps keep you warm
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    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    Seems very cultish. Maybe it's the next reincarnation of the Lightning Process in that you don't need the paper circles on the floor - you just chant the mantra without the need for props
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    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    I think it is related to this group which is part of the Oxfordshire NHS ME service - https://www.oxfordhealth.nhs.uk/service_description/oxfordshire-chronic-fatigue-syndrome-me-service/ I think I came across the paper when I was looking up the name of the author in relation to something else...
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    Wessely gets touchy feely

    The Oxfordshire service that runs this had the following on their website: What happens to information about me? All information is confidential and secure. Local NHS specialists for CFS/ME are in different teams and therefore information may be shared between services. With your consent...
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    Wessely gets touchy feely

    It's worth just looking at the rest of the pages to see the number of poems that are included and the diagrams of reflexivity - we have obviously missed this essential element of recovery Actually I've just realised a lot of the "poems" are not so - they have just been written to look like they...
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    Wessely gets touchy feely

    It seems that poetry and scientific studies in ME is more prevalent than we thought - I found this "research" article the other day and was flabbergasted the more I flipped through it. I haven't brought myself to actually read it properly because it really isn't worth the energy, but if you...
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