Search results

I do think there is a good deal of fraudulence that has been exposed with PACE, and I hope in due course it gets aired in a legal setting. Mainly because I don't think patients who suffered the consequences all these years will be properly acknowledged and recompensed until that happens. I...

Merged thread (also posted here) This is brilliant!

Precisely.

Understood. And in any case you would not want to make it possible for some to potentially accuse you of mishandling funds. No matter how unfounded such claims would of course be, there is no sense making things easier for such people to smear campaign. The way things are everything is clear for...

If you can't see the subtitles then click on where I've highlighted. I could not see them at first.

Just watched this, and very, very impressed. I don't have ME/CFS, and I still agree the hand waving is distracting. I had the sound off. Although it doesn't say anything that most people here won't already know, it does a super job of pulling most of the useful advocacy information together...

I think the point @Brian Hughes was making is that in PACE the participants should have been blinded to the extent of not knowing which arms were receiving interventions being investigated. But the PACE investigators seemed to go out of their way to not hide anything.

I've listened to that bit again, and I think I agree with you. I was very focussed on what has been said here in S4ME before - that it is impossible to blind participants to their treatment. But what Brian points out is that even though participants might know what their treatment is - CBT or...

The deadline for comments is one thing. But the deadline for funny handshakes and oblique influences from people of eminence is another.

If a delay means a better chance of the right result then I'm OK with that; if it doesn't then I'm not. Trouble is I've no idea what the delay means.

Two contradictory possibilities come to mind: NICE are determined to get it right, and there is a lot of material to analyse and get to the heart of. There are forces afoot making waves, and manipulating delays in order to better further their cause. I dearly hope it is '1'.

Yes, very good. A bit unsure where @Brian Hughes criticises PACE for not employing blinding. This can be easily countered by PACE advocates that PACE trialled interventions that cannot be blinded, so to criticise them for not doing so is a flawed criticism. The point, surely, is not that the...

It is only a supposition of mine, that's all. But I find myself asking: "Would they not be consulting lawyers at this time, given how they are forever dropping themselves in it?"