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Some really good donations recently :).

Done.

Yes, agree entirely, and in fact this ties in with what I was saying I think. Observing my wife, the longer she applies power to something (walking for instance), the more her power progressively declines, meaning in this case her walking speed slows. Or to put it another way, the longer and...

Sadly ironic that they are the "trolling campaigners" in this tragic parody of scientific research.

Just to put a spanner in the works here :facepalm:. I do know of someone very prominent in a ME advocacy organisation who mentioned long time back they were worried because not sure if they experienced PEM. I've also gone through phases when I've thought my wife (the person with ME), may not be...

Also to add what I've mentioned a good few times in the past. Although we speak of energy limitations, I'm pretty sure it is more accurately a power limitation. i.e. A limit of the rate at which energy can be processed (and subsequently recovered). Like a partial fuel blockage. My wife is the...

All about cultivating influence and power I think.

Agreed. It does not mean your "right" to free speech trumps everyone else's human rights. It's a right conditional on not abusing the rights of others in the process. And the human rights of pwME have been so very much abused down the years.

I can't remember what research has or has not been done it this area, so please excuse if I'm going over old ground. When a healthy person catches a virus, and then gets hit by what might be thought of as "normal" post viral fatigue, and then recovers thereafter, are the physiological...

As @Trish says, it's not for laypeople to presume any causes of ME/CFS. We are Science for ME/CFS after all. But if you were instead asking what reported correlations might fit with our own experiences, post viral issues would be one. My wife had an operation and went down with a nasty bout of...

The deceit they utilise in working around the ASA ruling, simply illustrates what their "beliefs and values" really amount to, and they have no intention of changing - deceit.

Donated. Got a bit confused as I went via the A4ME link rather than the ME Association, but both say for GNR so should get there OK.

Feels to me like they are just trying it on with the "not in the public interest" thing. More like they feel it is not in their own interest. There must be a definition somewhere surely of what counts as a valid refusal to disclose based on the various potential reasons. Else people could just...

It may be inflammatory to them, but only because they are incapable of coming up with any cogent rebuttals. So they just airbrush away what they are incapable of countering. Do they really not see how pathetic they show themselves to be.

They are in fact lying, because a response has been published. The fact they later chose to remove it does not change that. Have we got the evidence there was a response published? Because if it can be shown they did publish a response, and then removed it, for all to see what they have done...

About to put my wife's sample into the post box shortly :).

Thanks Andy.

Sorry, yes we just double checked and realise it was only 26 June she did it and the email did say it would be a few weeks, and she did get confirmation of having applied. Just feels like a long time when keen to be part of it ;), should have double checked first. Our apologies.

Do we know when the kits will be getting sent out. It's quite a few weeks since my wife was told she would be getting sent one, but no sign of one yet, nor the email to say one was being sent.

The PACE trial GET manuals make it very clear the PACE authors presume CFS/ME (as they call it) to be deconditioning by another name. The whole concept of GET is based on this deeply flawed assumption, so no matter what the flowery denials by the PACE authors, GET is a treatment targeting a...