Recent Activity
Activity stream for all registered members at Science for ME.
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alktipping liked Lou B Lou's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
I was deeply concerned about the misconception of PEM by a researcher that appeared on this Forum - that PEM can appear for a few minutes.
Jun 11, 2024 at 11:35 PM -
alktipping liked Peter Trewhitt's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
In another thread @Trish, I think, did an excellent post distinguishing the various post activity fatigue states that are dangerously...
Jun 11, 2024 at 11:34 PM -
Joan Crawford liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 11, 2024 at 11:34 PM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
I really, really hope you ge a polite apology. I’m sure they think they’re being brilliantly inclusive. I wonder whether they would be...
Jun 11, 2024 at 11:34 PM -
forestglip replied to the thread Loss of smell and taste.
I decided to switch to essential oils as the odor, so that it can actually dissolve evenly in the solvent. And for the solvent, I used...
Jun 11, 2024 at 11:34 PM -
alktipping liked Lou B Lou's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
Yes, the term PEM is being both diluted and hijacked.
Jun 11, 2024 at 11:34 PM -
alktipping liked PhysiosforME's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
https://pubmed.ncbi.nlm.nih.gov/35079817/ I have used this reference to describe potential links between Long Covid and ME and suspect...
Jun 11, 2024 at 11:34 PM -
alktipping liked RaviHVJ's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
Here’s the paper: https://academic.oup.com/eurpub/advance-article/doi/10.1093/eurpub/ckae034/7616634?login=false
Jun 11, 2024 at 11:34 PM -
alktipping liked Simon M's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
That seems very low relative to the size of the 'limited a lot' category, and reports of LC more generally. Do you have a link to the...
Jun 11, 2024 at 11:33 PM -
alktipping liked Trish's post in the thread #MEAction UK: Questions to Ask Prospective MPs About ME/CFS.
Discussion on this thread:...
Jun 11, 2024 at 11:32 PM -
alktipping liked MBailey's post in the thread #MEAction UK: Questions to Ask Prospective MPs About ME/CFS.
I'm sure there is a discussion I've not seen on s4me on what is considered a better number to use? Anything we claim, we need to be able...
Jun 11, 2024 at 11:32 PM -
alktipping liked Andy's post in the thread #MEAction UK: Questions to Ask Prospective MPs About ME/CFS.
Unfortunately I feel that providing a figure that misrepresents the likely scale is as unhelpful. Issues with the CDC survey from the...
Jun 11, 2024 at 11:31 PM -
alktipping liked Janna Moen PhD's post in the thread NIH study - where to start?.
I am actually working on a blog post for this purpose, but it's taking quite some time. I'm glad to have found this forum as the folks...
Jun 11, 2024 at 11:28 PM -
alktipping liked Wits_End's post in the thread NIH study - where to start?.
Welcome, then, Janna! Sounds as though you'll be a good person to have on board.
Jun 11, 2024 at 11:28 PM -
alktipping liked Hutan's post in the thread NIH study - where to start?.
One of the other biggest concerns @cassava7 was the small size of the cohorts. For most of the studies, the size is considerably...
Jun 11, 2024 at 11:28 PM
